The Undiagnosed Community Group
For those of you who doctors have said \"I can\'t find anything wrong with you\" yet you live day to day in pain, numb, pins and needles, dizzy, exhaustion, light headed etc. NO YOU ARE NOT CRAZY
Dear Friends I have not met yet, (01/01/2015)
HAPPY NEW YEAR, 2015. I am emotionally spent, but have to get up for work every day and face my life and face things...It has been very horrific and stressful to have this tender, deep internal pain and to not be taken seriously. I am 100 pounds overweight, so I know that is not making this pain and easier. My husband thinks I am crying wolf and I have no support from anyone else. I need help! And support. It takes all I have and all my strength to get through each moment.
I do not have the time to write as I want to as I have very little time and energy, and I am struggling each day.
I am asking and hoping that anyone who reads this tries not to diagnose my problem...I just need a listening ear and want to find other people wh are going through the excrutiatingly and infuriating painful situation of suffering with no diagnosis and not having a supportive doctor.
Since June, I have been suffering pain on my right side. I went to the ER back then and the ER doctor did a CAT SCAN at Harborview Medical Center. His name was JP. He told me it was muscular pain. A hematoma pain on my abdominal wall pain.
I have been suffering badly since then. My doctor is a jerk, putting it nicely, who has tried to bring my anxiety into this and tell me that I am worrying too much, and maybe I should go on disability, rather than him trying to approve a Cat Scan (I am infuriated that it was denied for not being medically necessary, and to make matters worse, he is not helping me fight the denial as he says I do not need the radiation, rather than letting me the one to worry about that. It hurts, b/c I have known this doctor for a long time, eight years, and he does not take me seriously.
Last week, I ate popcorn during a movie, ate some popcorn and got sick from the popcorn and vomited profusely...and the next day I had severe pain in my stomach area, which made the pain on the right side worse. The right sided pain is right around my waistline area on the right side. If you draw a line out from the belly button to the right side, it is very tender. My doctor claims it is constipation relate and that it is a combination of constipation and muscular pain, but has not told me when the pain will heal and how it will get better, and just told me to take Miralax.
Then my doctor said if I got a colonoscopy and it came up normal...he would order a Cat Scan, but then fought me on it when it did come out normal and I asked for it.
I went to another doctor a few months ago who I had left due to how she had treated me and I should have never gone back, b/c she said, "You have a cyst, and people get them, and you have one, and there is nothing you can do about it." That was upsetting and not good enough and she walked out of me, which I found abusive, and she was very compassionless, so I was left in a hump in tears.
I am now at a point where as someone who has been very poor and chronically unemployed and working as a temp, I feel this is going to be a MAJOR uphill battle as I am FORCED to find another doctor b/c they will not listen to me. His assistant named Christina said I need to go on disability due to anxiety and mental health and that is deeply offensive to me that they are resorting to that, and that they are saying I should go on disability rather than spending all that energy approving the Cat Scan and helping me find out what is wrong with me.
Anyway, I thank you all for listening and I wish you all the very best...I hope to meet some new people and make some new friends on here. :P
HAPPY NEW YEAR, 2015. I am emotionally spent, but have to get up for work every day and face my life and face things...It has been very horrific and stressful to have this tender, deep internal pain and to not be taken seriously. I am 100 pounds overweight, so I know that is not making this pain and easier. My husband thinks I am crying wolf and I have no support from anyone else. I need help! And support. It takes all I have and all my strength to get through each moment.
I do not have the time to write as I want to as I have very little time and energy, and I am struggling each day.
I am asking and hoping that anyone who reads this tries not to diagnose my problem...I just need a listening ear and want to find other people wh are going through the excrutiatingly and infuriating painful situation of suffering with no diagnosis and not having a supportive doctor.
Since June, I have been suffering pain on my right side. I went to the ER back then and the ER doctor did a CAT SCAN at Harborview Medical Center. His name was JP. He told me it was muscular pain. A hematoma pain on my abdominal wall pain.
I have been suffering badly since then. My doctor is a jerk, putting it nicely, who has tried to bring my anxiety into this and tell me that I am worrying too much, and maybe I should go on disability, rather than him trying to approve a Cat Scan (I am infuriated that it was denied for not being medically necessary, and to make matters worse, he is not helping me fight the denial as he says I do not need the radiation, rather than letting me the one to worry about that. It hurts, b/c I have known this doctor for a long time, eight years, and he does not take me seriously.
Last week, I ate popcorn during a movie, ate some popcorn and got sick from the popcorn and vomited profusely...and the next day I had severe pain in my stomach area, which made the pain on the right side worse. The right sided pain is right around my waistline area on the right side. If you draw a line out from the belly button to the right side, it is very tender. My doctor claims it is constipation relate and that it is a combination of constipation and muscular pain, but has not told me when the pain will heal and how it will get better, and just told me to take Miralax.
Then my doctor said if I got a colonoscopy and it came up normal...he would order a Cat Scan, but then fought me on it when it did come out normal and I asked for it.
I went to another doctor a few months ago who I had left due to how she had treated me and I should have never gone back, b/c she said, "You have a cyst, and people get them, and you have one, and there is nothing you can do about it." That was upsetting and not good enough and she walked out of me, which I found abusive, and she was very compassionless, so I was left in a hump in tears.
I am now at a point where as someone who has been very poor and chronically unemployed and working as a temp, I feel this is going to be a MAJOR uphill battle as I am FORCED to find another doctor b/c they will not listen to me. His assistant named Christina said I need to go on disability due to anxiety and mental health and that is deeply offensive to me that they are resorting to that, and that they are saying I should go on disability rather than spending all that energy approving the Cat Scan and helping me find out what is wrong with me.
Anyway, I thank you all for listening and I wish you all the very best...I hope to meet some new people and make some new friends on here. :P
freelee
Hi Rebekah 123, so sorry to hear this. I was so sick of being told I had anxiety or Was menopausal or a pain medication addict when I was undiagnosed. I spent so much time and energy getting a diagnosis. I think I changed doctors 10 times. I am here if you need to talk/vent etc.
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