Terminal illness support group Community Group
This group is open to all who have been diagnosed with a terminal illness. It is a safe haven where you can vent, cry, laugh, or simply sit back and read and gain inspiration from daily posts. You will make many friends here as we journey together. This is a place where hope will be offered on a daily basis. When you can go no further this group will help carry you...
Do you know where Beth is? How she is? Anything about her at this time? Did I miss something and she has left us? Is she in the hospital? Just can't understand if she could be online with us she would. Beth we miss you hun. Praying all is fine with you.
long time no see. i hope you are doing as well as possible.
I found a website for the organization beth started http://www.wstfcure.org/about.html "Worldwide Syringomyelia & Chiari Task Force Inc."
it has a link to a facebook site, but it's a closed group & i don't have the dx so i didn't "join".
also she did a youtube video about the organization when she 1st started it https://www.youtube.com/watch?v=Cu2MGvNrVEQ (whew i went to youtube & put in her organization & it brought a few videos up, but they all look like old ones)
I haven't seen any new things about the group or beth so i'm not sure if the organization is still going or what happened to beth.
She is always in my prayers.
Small world,saw yr name w/ the word "syringomeylia". Haven't heard that term for many yrs. My youngest daughter had surgery for that when she was only 4.5 yrs old (very tramatic for us at the time). Cervical spine C2 thr C6. She was born w/hyrodrocephalus (water on the brain)had14 surgical procedures by age 9, but that surgery was the scariest. My baby (that's her), is now 51 yrs old w/3 grown children of her own. During that surgery they have to go into the central canal of the spinal cord and the big scare is paralysis (from the neck down). I still shutter when I think about it
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Well, where did all the years go??
Bye for now........Theresa
fancy meeting you here.
That is an amazing story about your daughter. Must have been so scary for a mother to go thru, but glad it turned out with a happy ending.
i like happy endings & needed one to perk me up today
(((HUGS)))
j