Syringomyelia Support Group

Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.

224 Members
427 Posts
0 Online
Brain & Nervous System
/ Syringomyelia Support Group

There is a new person that has come to DS

Monte
Monte
Her name is DeAH,at least that is what her avitar says.She has Chairi One and Syringomyelia and she is reaching out for help and advice.Just thought that some of us that have the same things as she does could give her a shout and maybe help her.I know that all of you care so look her up and give her some support ok.
deleted_user
deleted_user
where is her profile and where is she from ?
Monte
Monte
Her profile should be under Members,if you go to the top of this page just under Syringomyelia Support Group,click on members and type in DeAH and it should gert you there.The reason that I know her Is that she contacted me in a message and ask for help and prayers and hugs.She is from the Kansas City area.Look her up.If you still have problems finding her get back to me.
deleted_user
deleted_user
cant find her .
Monte
Monte
Try going to my profile and looking her up in my friends and then trying clicking on her avitar.I know that she is on here but don`t know why it is so hard to find her.If that dosen`t work please get back to me and I will try and get some one from the management of DS to look into the problems.
Monte
Monte
P.S.
You can also Google the Kansas City Star and look up any articles that have Chairi and Syringomyelia.It should get you to the article about her and a brief story about her treatments.