I am new to this group. I'm a 35 year old stay at home mom living in Canada. I have 5 and 8 year old boys.
I started experiencing symptoms 4 1/2 years ago (mainly dullness in left leg/foot and weird sensations that would jump around). Took a while to get in to see a neurologist, who gave me an MRI. I was convinced he would say I had MS because my symptoms were so similar. He says no MS, it's just some fluid in your spine, but it's likely something you've had since birth and not the cause of your symptoms. So we did a follow up MRI 6 months later to be sure it was stable, and it was. (It is T3-T6)
So I tried my best to put it from my mind and live my life, raising two kids. I had very few symptoms, would go 1-3 months feeling no more than the odd weird sensation that was slight and last a few days and go away. This was interspersed with slightly bigger "relapses" lasting a few weeks where the odd sensations and dullness would increase to a more disturbing level, but the type of symptoms always were similar... usually sensory. Having been a few years, I had HOPE that it was in fact benign and wouldn't get worse. I had more days with NO, or almost no, symptoms, than ones WITH symptoms... I even thought maybe it was just something similar to sciatica.
Well, starting the beginning of April I've had the biggest "relapse" yet. And it's still going. These symptoms are new and now I am so sooo SCARED. For the first time I have pain. Aching muscles, pain in different spots on my left leg and now my left arm, too, my back beside the syrinx, my wrist, the odd shooting pain on the left side of my torso, the front left shin felt like I had stretched my muscle exercising when I hadn't done anything... two nights ago I was woken up multiple times with either my left leg or my left arm feeling like it had completely fallen asleep. Last night I was woken up with sharp back pain... My pain is not crazy bad, but I'm scared of where this is leading.
I know I will need to call my neuro again, get another MRI, and ask him to refer me to a neurosurgeon who hopefully knows more about this....
But... I've been doing research.... and I feel sooo hopeless reading about this diagnosis. I can't help constantly wondering "WHY ME?!" Pardon my language, but I'm scared shitless, my anxiety level is through the roof. How am I supposed to live my life, raise my boys, and pursue life with this hanging over my head?
All I read is: there's no cure, no one knows anything about it, no one can tell you how you will progress and how quickly, the only surgical options are sketchy and don't really work, no one knows whether to even bother with surgery, it will cause excruciating pain that won't really respond to medicine, and it will eventually paralyze in addition...
Can anyone help calm me down or offer hope? Please? How do you deal with this? This is basically my biggest fear in life come true.
Hi, I've been having back pain for a few years now. Started with pain zinging down left leg and stopping at knee. Lumbar was the outcome determined, which was diagnosed as lumbar facet joint arthritis and degenerative disc. Facet block injections seemed to help. Over the course of the last year I started getting tingling, spasms, stabbing pain in mid back. During that same time I had a...