Hi there, I'm a 30 yr old wife & mother of 3, I found out about my syringomyelia about 1 1/2 yrs ago, after complaining of neck pain I was orderd a MRI, well nuero symptoms weren't too far behind. I have a very large syrinx at C4 - T2 and it takes up the entire width of my spinal cord. I have extreme pain in my neck and upper back, numbness & tingling in both arms and sometimes my legs. I have numbness & tingling across my face and at the top of my head. I am un able to work because I am unable to lift anything over 5 lbs and can't strain my neck by sitting for standing for too long. I am in constent pain and have seem multiple nuero surgeons and ortho spinal specialists who won't /can't do anything wether they don't feel comfortable with the risks or what not? Anyhow I have a new surgeon apt this friday, and I am thinking he is gonna take the challenge, I have been told I need the surgery because if I do nothing symptoms will only get worse and they will become permanent until becoming paralyzed. I am terrified to have the surgery however don't feel as if there is anyother choice, I am told there is a great risk in paralyzing me, just with the surgery, I am so worried about this, like I said I have 3 young kids, and I just moved to NV. I guess I want to know if anyone has actually had the surgery for this? and what was the outcome? good or bad, I wanna hear it. I have had the hardest time finding anyone who is in a similar situation, I hope I can find some help here. Thanks.
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