I know I haven't been involved here for very long but I have to say I'm personally disappointed at the lack of activity. I've put up postings and invited responses but invariably nobody bothers? It's very strange. Syringomyelia is rare and little understood, I had hoped that fellow sufferers would therefore look to such a forum for mutual support and understanding. I regularly post on a UK site re Fibromyalgia and the response there is wonderful. Someone always takes the time to answer and help whatever the posting, even if it's a rant.