Syringomyelia Support Group

Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.

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Brain & Nervous System
/ Syringomyelia Support Group

Adult tethered spinal cord with syrinx below L1

Roni
Roni

I am a 66 yr old woman with the above condition.  I have recently experienced a severe burning pain that begins in my lower back and rushes down my thighs.  I believe it is from the syrinx.  It leaves me nauseated and breathless, but passes in seconds.  I am now afraid to do any meaningful excercise and I would NEVER

Roni
Roni
Sorry, hit my computer button wrong!! I would never go to a chiropractor with my condition (my neurologist referred me to a teaching hospital, but I would never go through neurosurgery again at my age, after having my spinal cord retether following surgery at age 44.

My neurosurgeon gave me a wonderful TENS unit which helps with pain.
Canuck1
Canuck1
I would recommend against any chiro activity for this problem at all. The issue is 2 fold:

1. Most doctors (not just chiro) don't have a clue what to do with a Syrinx.
2. Chiro adjustments in my case inflamed certain areas rather than alleviate symptoms.

The one thing of course I have learned over the years is little consistent view of what helps and what doesn't. But, I will be posting my story now that I found this forum and what has helped me for the past 40 years.