My biggest issue is being made to feel like PKD is no big deal since there is nothing the physicians can do until failure. I went to  ER with excruciating pain wrapping around my ribs, literally throbbing to where I felt dizzy and nausea , this started 2wks ago. Working full-time and being so stressed anyways, I seriously thought I was having a heart attack.  But no, it's just very large cyst hemorrhaging I'm various places. I realized how important my state of mind is going to be in moving forward.  Exhausted and more crappie days than good I see that only I can decide to let it emotionally defeat me, physically it tries but my mind and strength from others who know will be so important I'm this life long journey.