As most of you know nearly 7 years ago, I lost my grandson to SMA. Over this past weekend, my great nephew Ryker ended up in Cooke's Children Hospital in Dallas. He is 10 weeks old today. He was having difficulty breathing and wasn't eating. So far all they are being told is that it is muscular. I had to contact the maternal grandmother, since the paternal grandmother (my late sister in law) is no longer available and I did not want to upset the parents and enlighten her about Gavin and the what is going on with Ryker. After talking to her, I even became more concerned. Everything she was telling me about Ryker is what I keep telling Renee about Gavin. Sherry was glad to get all the info on SMA and she was able to make the hospital staff aware of the possibility of this genetic disorder in our family. Right now all we can do is pray. There has been some progress in drug development to help the little ones affected with this, but not nearly enough.
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