Frankly I was hoping for Kennedy's. At least with that I might grow boobs. I know what you're thinking, "Poor guy. He'd grow boobs."
BUT! Who doesn't like boobs, right? Would they grow in like a teenager's though? Like little traffic-cone shaped A-cups or since I'm old would they go right to saggy?
Not that it matters since it looks like I have SMA. Color me disappointed.
Aren't I supposed to have muscle weakness though? I'm as strong and as graceful as ever. 100% of my issues are speech, swallowing and breathing. It's taken me seven years to get to this point so it's not bulbar ALS, like the SFEMG test was pointing at. That would have killed me a long time ago.
My shoulders, hips and chest seem to be as strong as ever (minus whatever I've lost since I'm pushing fifty years old (no one ever asks which side you're pushing it from. Think about how you can use that ;-)).
Does anyone else have type 4 and have any advice? I'm baffled. Why am I not getting any weaker and is there such a thing as Bulbar SMA?
Hello everyone, I’m 45 and have had CFS for almost 22 years now. I’ve never posted on a CFS support group website or attended a face to face support group so I’m just going to dip my toes in the pool first. I’m down to being able to only work two days a week at a pharmacy chain and I’ve started to sell my artwork to supplement the very meager wages I am paid. I plan on donating 10% of...
Has anyone heard from Darla recently? I know she was frustrated by the changes to this website. I miss her wisdom and am worried about her especially with all the cold weather happening on the east coast. I tried sending a personal email message and she has not responded. Maybe I used the wrong email address. I will try again.Hope all my friends here are having a good start to the new year.