Spinal Muscular Atrophy (SMA) Support Group
Spinal Muscular Atrophy (SMA) is a term applied to a number of different disorders, all having in common a genetic cause and the manifestation of weakness due to loss of the motor neurons of the spinal cord and brainstem.
My niece is nine years old and thus far has been doing well coping with her SMA diagnosis, but I notice she is angry at times and unable to express it. She has been to a therapist before and some progress was made but in general she still is having difficulty expressing her feelings. She is unwilling to talk about how she is feeling at this time. Does anyone here have experience with the same and if so is there any advice that can be offered. Thank you!
It's certainly understandable she's angry, I could probably help more if I knew her diagnosed type or her limitations (wheelchair electric or manual, arm strength can she still throw a ball overhand, etc...)
By knowing this I can tell where she's at in her life and try my best to convey the right advice