Spina Bifida Support Group
Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).
Also now that you know what you have, you can do more things at home to help it. For instance I have kidney nephrosis as well and the doc said to make sure to:
Drink lots of water...
Make sure that when you need to go to the bathroom, that you do it asap and dont hold it for a long time
Anyways I hope and pray that you wont be stressed by all the testing and doctors. Hope you're doing okay now...