Sjogren's Syndrome Support Group
Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.
I wrote about being cold and THANKS so much for input. I have been reading about different conditions and it seems that Wilson's fits my condition. I am mapping my tempature every three hours when I am awake for a few days to see what it does. I am always 97 or below. Does anyone have wilson's with Sjogren's?
Just did some reading on Wilson's Temperature syndrome this morning since you piqued my interest. My body temperature has run lower than "normal" for as long as I can remember. I was (finally) diagnosed with autoimmune thyroid disease (Hashimoto's) in 1998.
My father's temperature was always on the low side, so by the time it got up to 99F, he was really sick. Until I read your note, I never knew there might be a condition that could explain it.
Evidently some, including Dr. Wilson who named this disorder, feel that the "normal" temperature is bogus for at least 1/3 of the population. This may be a low-grade hypothyroid condition and treatment with T3 might help. I can tell you that Armour thyroid does have the T3 ready to use since it's made from ground up thyroids, and has been a miracle drug for me with Hashimoto's thyroid disease. Synthroid was virtually useless and barely raised my levels to the bottom of the chart. With Armour I'm functioning at a much higher level, and my blood work reflects a much more normal level too.
I'm posting the article from the thyroid.org website so you can read it yourself.
http://tinyurl.com/hc523
From Mayo Clinic's site: http://tinyurl.com/4b6kejq
(Typical medication perspective as far as I can tell....If I don't understand it, it must not be important...)
My feeling is that they really don't understand it yet. When Dr. Sjogren first wrote his paper on his patients, the medical community basically ignored his work. Who knows, maybe Wilson's T.S. will in time become a recognized disorder with actual treatment.
I would swear on it that I am also hypothyroid when you look at my symptoms ~ but my tests always come back negative. Darn it. So frustrating.