Sjogren's Syndrome Support Group

Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

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What's dry mouth like?

Achybones22
Achybones22
Hello All,

What is your dry mouth like? Is it all the time? Or only intermittent?

I have the sjs antibodies for 8 years now, and only recently got dry mouth and is intermittent. About 3 months ago, I suddenly need to have a candy in my mouth in order to sleep through the night. Then I went to an herbalist for some herbs and got better--don't need the candy now. And most times, my mouth is normal. Is this due to sjogren's? Or is it something else? With the right herbs (and they change according to my general health condition), the dry mouth comes and goes.

Is this sjogren's dry mouth?
billylyne5
billylyne5
Mine comes and goes, two nights ago it kept me awake all night yet last night I woke up drooling which was weird. Sometimes my mouth is sore especially my tongue which feels like it's burnt.
redladyjayne
redladyjayne
Some nights I wake up feeling as if I can't breathe because my mouth and nose are so dry. I started using Biotene gel last night, but this morning my tongue feels sore and my mouth seems dryer than normal
GammaR
GammaR
Achybones22: Make sure that you are staying well hydrated throughout the day.....esp in the morning before breakfast it is good to drink several big glasses of water. My mouth tends to be much dryer in the morning then off and on during the rest of the day and night.
My tongue is extremely sensitive but I have learned what foods make it worse (tomatoe products such as ketchup and pasta sauce, any vinegar based product such as salad dressing, pickles, etc. . I also avoid most acidic fruit such as grapefruit and pineapple.
My lips are another story.....they are pretty sore and raw feeling most of the time and I haven't found a product yet that soothes them. Any sgogies out there with ideas?
unexpectedanswer
unexpectedanswer
Gamma, give extra virgin organic coconut oil a try. It is natural and can't hurt you, perhaps if you buy some and put it in a tiny container for easy access. The only downfall is that the heat makes it melt but this helps soften the skin and has no adverse reactions that I know of. I have used it on my lips with no problem. However my dry mouth has been acting up lately and I have been using Xylimelts at night and Spry gum during the day. Xylitol is the main ingredient in these 2 products and also a side benefit is that it helps your teeth.

For my dry eyes--- I use Refresh PM which is an ointment at night to keep my eyes from being shut in the morning. I also use natural preservative free eye drops to help my eyes throughout the day.

For my dry nose , at night I use something I ordered from Amazon called Ponaris Nasal Emollient which does the job and I no longer have any nosebleeds. Lately my symptoms have been worse but I have also been eating a lot of take out and not sleeping too well so I am sure this is all contributing to it.

Please keep posting your questions and share what is working for you. As we are told there is no cure for this horrible autoimmune disease but we can make choices that lessen the severity of this as we go along.