Hi,

I am not saying this is the cause but we do have, I believe three salivary glands that run along the jaw and up to the ear. If these glands are blocked, dry or anything else I can imagine it can be pretty painful. Another possibility is inflammatory arthritis that we are blessed with.

Do you clench or grind your teeth? If you do you should look into a night guard for the grinding. They do help.

Hi There,

I am new to this board and also just starting to learn about my Sjogren's so feel free to correct me any time...

I also have jaw and teeth pain very frequently, always on my right side...kinda feels like I have a wisdom tooth that needs to come out, but I've already had my wisdom teeth removed.

I use an overnight saliva substitute and it is not fully dissolved when I wake up, so I guess it is working.

I also have the Inflammatory Arthritis, but thought my Plaquenil was working pretty well...never thought of having inflammatory arthritis around the jaw/face area.

I was dx'd with atypical trigeminal neuralgia following questionable dental work. I just started a post/thread about it. The pain was and still is at times, nightmarish.

I take Desipramine (like Elavil) and my neuro worked with a compounding pharmacist and created a cream that I put on my face that contains the following: Gabapentin, Lidocaine and Capsaicin. These things, over time, have helped noticeably. I still have weird breakthrough pain. A cool wind on my face will set it off very badly. I have some Percocet to take in case of emergencies.

Yes! And, I have found that there is not one place in my body that SJS has not, and does not have an affect.
I have chronic pain and systemic problems of all shapes and sizes due to this horrible syndrome.

I get it so bad, it feels like an abscess forming. Dentist couldn't find anything wrong. It's part of Fibromyalgia, I believe. I have fms and ss so it's hard to know.

I do use a mouth brace at night. Did you ever get diagnosed with fibro? I'd check into this if I were you. And have a sleep study, because lack of delta sleep, slow and deep waves, causes pain and stiffness.

The headache pain that I have had for years and thought was sinus-related has just been diagnosed as trigeminal neuralgia. I don't have joint pain or fibromyalgia. I recently had a dental implant, but I have had these headaches as far back as my teenage years. I was given a pain medication for the headache and was pleased that it worked on the one headache I've had since getting it.

Sure sounds like this may be yet another gift from Sjogren's.

I have had terrible ear pain since having some dental work done. My doc feels that I may have TMJ arthritis. However, I don't know if it is osteoarthritis or inflammatory arthritis. She wanted to refer me to an oral surgeon but since I go through health services (no insurance) the referral was denied.

All I can do is take pain meds, I ice and use a topical anti-inflammatory gel called Volteran Gel. These things probably help a little but the pain is with me 99.9% of the time and mostly in my ear but when I am rubbing the gel on my joint by the ear it is quite tender.

Hope you feel better. If it is inflammatory there is always a chance it will subside. That is my prayer.