Sjogren's Syndrome Support Group

Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

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barbie222 08/26/2012

Hi everyone,
I just thought I'd ask if anyone's having trouble with taste bud problems? It seem like I'm craving sweets alot lately...but I think it's because it's that sugary foods are so full of good taste (to me) that other foods just don't taste good anymore. It sounds a bit silly, but I feel somethings wrong, and becasue Sjogren's affects the salivary galnds, I wasn't sure if the taste buds could be affected.

Does anyone else have this problem? Any feedback would be appreciated. Thanks. :)

lynnedavidson3 08/26/2012

Yes, I have the same thing. My taste buds aren't working like they used to. I also crave sweets! Gained some weight to prove it!

deleted_user 08/26/2012

thats funny you wrte this...i just bought 2 bags of the candy corn m&ms ..i have been sick to my tummy and dizzy...i only had 1 cup of coffee today ..nothing taste right..im new to this so im learning a ton...this has been going on for a few years but just dx 3 weeks ago

deleted_user 08/26/2012

I am having these EXACT symptoms. Dimished taste. Only sweets taste the same to me. Have a huge sweet tooth. The taste buds rely on saliva to work properly. No saliva equals dimished taste. :(

deleted_user 08/26/2012

I am having these EXACT symptoms. Dimished taste. Only sweets taste the same to me. Have a huge sweet tooth. The taste buds rely on saliva to work properly. No saliva equals dimished taste. :(

deleted_user 08/26/2012

I am having these EXACT symptoms. Dimished taste. Only sweets taste the same to me. Have a huge sweet tooth. The taste buds rely on saliva to work properly. No saliva equals dimished taste. :(

deleted_user 08/26/2012

I am having these EXACT symptoms. Dimished taste. Only sweets taste the same to me. Have a huge sweet tooth. The taste buds rely on saliva to work properly. No saliva equals dimished taste. :(

deleted_user 08/26/2012

I am having these EXACT symptoms. Dimished taste. Only sweets taste the same to me. Have a huge sweet tooth. The taste buds rely on saliva to work properly. No saliva equals dimished taste. :(

deleted_user 08/26/2012

*diminished

and, sorry for all the repeats...

deleted_user 08/27/2012

I have this too, as well as have lost some of my sense of smell, which I'm guessing goes along with this. For years I blamed it on allergy medication, but maybe it's just Sjogren's.

barbie222 08/27/2012

Yes, my sense of smell i definitley affected too.., I guess they do go together somehow. Thanks for the replies. Blessings to everyone. :)

deleted_user 08/29/2012

I think the reason you are craving sweets is from the fatigue..sugar equalls energy. Instead of candy try switching to some healthy carbs. Sweet potatoes, oatmeal, other grains and rice. add raw carrotts, celery for crunch effect which is another craving we have. Stay away from sugars except as a treat off and on. Sugar gives you a quick high but then you crash so you then , need more it is .never ending ....SO not good for you.

deleted_user 08/30/2012

I've been reading about this and I noticed that I am adding more salt to my food. I do avoid sugar because of my teeth, weight and pre-disposition to diabetes. I do chew lots of sugarless gum and lemon drops.

barbie222 08/30/2012

Thanks for the replies...
@ jjcathcar: I agree...I do have extreme fatigue, with SJS, and hypothyroidism, chronic pacreatitis, so maybe sugar does give a lift.(Not very much, lol).But I'm having extremeily high lipids due to the hypothyroidism, (wchich also causes fatigue) and worry it's affecting the heart...so that's another concern I'm in the process of trying to get them down by leveling out my thyroid wiith levothyroxine. If this doesn't work I'lll start cloleserol lowering drugs. But, it makes sense about the cravings for sweets.
@Diane: Thanks for your reply also...I also wonder if the taste buds are affected, as they are associated with the salivary galnds somehow, just not sure how exactly. :)

Take care..Wishing eveyone all the best!

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