I've never been DX'd with restless leg syndrom, but I have a lot of problems with my legs. When I lie down, the pain is worse than when I am standing or sitting, so I need to move my legs and feet around a lot because they hurt... so not sure if this is a sign/problem with restless legs or not. Just one of my many wonderful problems.

Thankfully, this is not really pain. It's a strange feeling that is really hard to explain. For me, it's a weird feeling from the thighs to the kneel It's a feeling that you just have to move. Sometimes I try really hard to be still as long as I can and then all of a sudden you just have to move. It doesn't happen much while I'm laying down any more, mostly when I'm sitting. Thankfully, only have Primary Sjogrens or I guess that's what I have.
As far as I know, I don''t have any other autoimune desease.Mostly what I know about Sjogrens, I've learned by googling or by reading the comments on thease discussions. My doctor seems to be avoiding conversations about it after I had a positive test for it. Although he did put me on Plaquneil when I kept complaining about stiffness. And told me to be sure and get my eyes checked every six months.

Unfortunately, doctors don't give much information to their patients probably because they don't really know for sure either. I have had problems with Restless Legs for years. You will probably laugh at this, but someone at work showed me a home remedy for this and also night cramping which was to put soap under you sheets. Well, one night I was so bad off I said what the hell and put the soap there. I have not had a problem since and avoided more medicine. I use Ivory and Dove (two bars). Have to change it out every so often as it does loose effectiveness. Someone on this website did some research and found, I believe, that it may have something to do with Magnesium. Whatever it is it works for me. I keep the soap there all the time. And, as to whether or not it is related to sjs, who knows, but I do believe us sjogeys are more susceptible to many things that others may not be. Give the soap a try it certainly cannot hurt you and it might help. Good luck.

Thanks Whiteja. I think I'v heard that somewhere. ai don't have it as much when I'm in bed as when I'm just sitting on the couch.If it starts bothering me in bed, I will deffinately try it. zi don't know how I'd use it on the couch or chair but I'd be willing to put some bars beside me. I wonder if taking a magnesium suppliment would help. Seems like I've heard that too. It realy is misserable when you're constantly figgeting and can't be still. Even in church I guess I should be glad it's mostly when I'm sitting and not when I'm trying to sleep because I have had it then too and that's really misserable.

jewel12,
I do have restless leg syndrome. I've tried a few medications that help a lot. Lately though, I have been taking extra calcium and magnesium supplements. I think that the article I read had potassium supplements, but I didn't feel safe adding those unless my doctor found a low potassium level. My level is good, so I just left those off. I think the rls is better even if not gone completely

Improving my stored iron levels (Ferritin) with time-released iron supplements gave me relief, but I still ended up having to take Requip for RLS. I also have Restless Arm and Restless Belly syndrome. I literally thought I was going nuts until a neurologist told me about all three. Now that I'm taking Requip, sleeping is so much easier. I used to have to get up and walk around for several hours in the middle of the night, which made me so tired the next day I could barely function. Now that I'm able to sleep through the night (most nights), I'm doing much better. There are other RLS drugs, but Requip happened to the be the one that works best with my other medications.

Good luck!

Thanks for all the input. I'm goin to try magnesium for sure. I haven't mentioned it to my doctor yet but I'd like to avoid one more perscription med. So far, it doesn't interupt my sleep, mostly when I'm sitting at night. I do get cramps in my feet and shins in the night and have to get up and walk around. That's misserable too.