Sjogren's Syndrome Support Group

Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

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/ Sjogren's Syndrome Support Group

Remission?

beekaboo
beekaboo
Has anyone here ever gone into remission? How long did it last, if so? I read that it's not common. I feel like the more I read, the more scared I am. :/
deleted_user
deleted_user
HI,

I have read that there is no permanent remission when it comes to Sjogren's...some folks find that their symptoms become very mild with time and age, but the disease itself never really goes away for good, meaning a flare is always possible, and maintaining good eye and dental health, as well as having regular check-ups with your treating physician will always be needed.

I can't remember where I read that...so if anyone else here has any other information to add that would be great!

:) LuLu
deleted_user
deleted_user
* Sorry for the double post! I just wanted to add that I completely understand your point about the more you read, the more scared you get! The internet can provide a wealth of information, but not all of it accurate.
When I feel I need to research a DX I tend to stick to 2 very medically reliable websites that have no 'scare tactics' so to speak...
Mayoclinic.com and Pubmed.org
Both are professional sites that are well respected in the medical community, and the info is solid.

:) LuLu
deleted_user
deleted_user
Hi - I have heard the same as LuLu - your sympoms can lessen and decrease from time to time and I have read for years even sometimes, but once you have sjogrens, you always have it and there is no total remission for it.

I too get scared when I read about sjogrens and what it is capable of, but I try to focus on what I can do to try to lessen the symptoms and try to live my life to the fullest extent that I can with what I have.

I hope you find some relief for your symptoms. Sending positive thoughts and prayers your way.