Sjogren's Syndrome Support Group
Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.
I've had SS for a few years now and it's progressively getting worse. Does anyone experience extreme pain. The most recent flare went like this. Needles everywhere takes 2 days to go away, then low grade fever, then parotid pain on both sides, then sheer pain all over it's hard to take a deep breath.. cold, clammy, nausea, dizziness, and headache. Does any of this sound familiar to you?
twinmomab
It sounds very familiar, but I have also been diagnosed with small fiber neuropathy, peripheral neuropathy, and Fibromyalgia so I don't know what's caused by what these day. I just know I hurt nonstop and I get a lot of nerve pain which sounds like the needle pain your experiencing. Have you been diagnosed with anything else? You might ask for a small fiber neuropathy test or others to see if you have neuropathy.
Kimhurts
Have you tried gabapentin for the nerve pain? I use it for other autoimmune nerve pain. (I guess. I now have 3 plus fibromyalgia.) It helps me. It doesn't take it away, but it makes it bearable usually.
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Good day to all.So let me explain why we're discussing this today. The problem is, if your system gets too many (as in produces too many) it's a non-Hodgkin's Lymphoma (NHL) called Waldenstrom's Macroglobulinemia, and my husband was diagnosed in early 2018.Every monocloncal antibody or protein in your blood is essentially a blank, a slug, as they call coins that have been minted but not...
