Does anyone have lung involvement with SS? I was diagnosed by my pulmonologist with "interstitial lung disease," but the radiologist's report (ct scan) said "idiopathic pulmonary fibrosis.". I have been short of breath for about 7 years but not enough to raise a red flag--just enough to make me feel old (62 now) and out of shape. I have not searched for information about this because I know the information will only depress me, but I'm wondering if anyone else is dealing with this. I'm a pretty active person and try to work out every day, but as you know it's sometimes quite an effort to make myself get active.
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Not sure what is going on,but the last say 5-6 wks major fatigue. I have been doing really well for the past 2 yrs but recently I have been battling major fatigue. I have headaches that are at the top of my head whenever I cough and when i get up in the morning.after that the headaches are pretty much gone unless I cough. I recently retired from my job just in time because of the fatigue I...
I recently got diagnosed with Sjogrens a few weeks ago, after a whole year of constant complaints of pain and fatigue. I also developed Piriformis Syndrome that has given me terrible sciatic pain. (still not sure if that's related). Im 25 yo so this all came as a shock to me. I have been reading everyone's posts and i'm feelin goptimistic that once i start taking Plaquenil that things will get...
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
It's so hard dealing with pain especially when you don't get any support from the person who your supposed to be closest to. So hard when your trying to deal with pain and that person treats you worse than the pain. Having hard time understanding why. unless you are having a good Day you are treated like crap and they make you feel worthless.