My rheumy and family doctor have advised that the COVID vaccines available at the moment is unsuitable for people with autoimmune diseases. Many people having been telling me that the Pfizer vaccine may be the best product on the market.. I have contracted Corona last year, so perhaps I may not need the vaccine after all. Hope that helps.

Thanks, Andromeda8! That helps a lot! I am making an appt to see my rheumy doc first before I get any vaccine.

Here is the latest info about the COVID vaccine:

https://www.medicalnewstoday.com/articles/pfizer-jab-may-not-be-as-potent-against-b-1-351-variant

Here is a medical journal publication that states the COVID vaccine is ineffective in persons taking immunosuppressants for autoimmune diseases or are immunosuppressed because of their medical condition such as cancer. The immunosuppressants prevent the vaccine from mounting an antibody response to the vaccine antigen, so the vaccine is therefore ineffective for the immunosuppressive cohort. That is, there is no point of getting the COVID vaccine for the immunosuppressed because it will not make us immune to the coronavirus, unless we stop the immunosuppressants for a considerable of time before receiving the vaccine.

https://blogs.bmj.com/bmj/2021/03/30/vaccinated-yet-still-clinically-extremely-vulnerable/?=&utm_source=adestra&utm_medium=email&utm_campaign=usage&utm_content=daily&utm_term=text

I saw my rheummy doc today and asked him if someone with Sjogren's can take the covid vaccine safely. He said yes, any of the three (Pfizer, Moderna, J&J) are ok.

I am taking a steroid for a week for an acute inflammation. Maybe I should wait until the steroid is out of my system before I get the covid vaccine? (I forgot to ask the doc.)

Andromeda,
Thank you for posting those articles! Great info!

Thank you so much. None of my doctors are asking me BUT my therapist is driving me nuts. She acts like she is a doctor.

There is no reason anyone with an autoimmune disdease cannot get vaccinated. It's not a live vaccine. If you are on a biologic (which i don't thik anyone with just SS is) you may be advised to go off it for a week. But otherwise there is no reason not get vaccinated.

I have had two doses of Moderna.

I had both doses of the Pfizer vaccine in Jan/Feb. No issues at all.

After much delay, I finally took the Pfizer vaccine--1st shot. But almost immediately (within 20-30 minutes) I had an allergic reaction (anaphylaxis?)--feeling dizzy, nauseous, pressure in my chest and going up to my throat as though my airway was narrowing. difficulty breathing. This lasted about 2 hours. (I stayed at the vaccine site for 2 hours, afraid to leave).

I now read from the CDC website and others that if you have an anaphylactic reaction, even a mild one, you shouldn't take the 2nd shot. Instead, you should take the J&J one.

But I'm scared of the J&J one! All that talk about blood clots and now Guillian-Barre! We, who have Sjogren's, already have an overactive immune system--the last thing that I need is an autoimmune attack on my nerves with Guillian-Barre. I also have fibromyalgia which is a nervous system disorder.

Anyone else here experienced this?

Not all of my doctors are for the vaccine and I have a lot of medical providers. Only one insists but is not my major doctors and I don't see except once a year.

I received the J&J vaccine in April and have had no issues. I hope this helps.

Hello, my name is keo I'm new here. I had Merderma, April, 21. no side effects. I was diagnosed last March with Sojgren's. I also have SFN. I'm scared. My at are so stiff I can hardly walk, both sides groin, hands very clumsy. ETC. I'm getting IVIG THERAPY "fusions" at home. Hard to clean my home, standing, walking, sitting becoming painful. I read a article about Hydroxieclorine from Sojgrens Federation patients are using it. I hope I hear from this site.