Sjogren's Syndrome Support Group
Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.
Does anyone have any advice for dealing with the fatigue? These past few weeks I have had no energy what so ever. I do see my rheum. on Tues. I take plaquenil, B-12, vit D, folic acid, fish oil. and IVIG treatments for the neuropathy. We are moving and my poor husband has been trying to do most of the packing and moving himself. I do a little and then I have to rest for a while and then do a little more. The fatigue is just is just so bad. Thanks for any advice.
We're about to move too and the idea of packing up this house is inconceivable to me. My husband is going to have to do most of it himself. We've moved so many times and this is the first time I'm not able to do a lot.
Fatigue passes when it passes. For me, there's no rhyme or reason. I can sleep through the night and wake up feeling like crap. And some days I can get a few hours of rest and feel relatively normal. It's the ebb and flow of disease activity.
What I can advise you to do is to listen to your body. If you're blessed enough that your husband can do most of it, don't feel bad or useless, take the opportunity to do what you can and rest. I'm sure if the roles were reversed, you'd do the same for him. :)
I do have fatigue and flare and horrible pain when I took folic acid and fish oil and when I stop taking them I feel much more better so my advice to u is to stop them for awhile and try to drink a lot of fresh juices as apple and kiwi and eat 3 dates in morning and small piece of ginger daily that really helped me better than vitamins cause that also caused me flares,try to be more vegetarian and stop eating meat and eggs and milk
I hope that helped u, take care