Sjogren's Syndrome Support Group

Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

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Muscles & Bones
/ Sjogren's Syndrome Support Group

Vitamins

flowerlady58
flowerlady58
I just wanted to share with you all that I have been taking vitamins for the past week and man what a difference. At first about 2-3 wks ago I took some vitamins from amyway and I felt great!! but it would of cost me $76 a mth for them so I took the info on their vitamins to my doctor who is really into vitamins and natuarl stuff. Here is what I am taking and I just get them at the store. just make sure it doesn't have any fillers.
100% of B12
5,0000iu of D
C
plus a multi vitamim
biotine 500 (hair loss)
I am not fatique like I was before taking them. I feel really good. I do want to say that S.S. is my primary and that is all I have for an illness.
deleted_user
deleted_user
Oh, flowerlady! Thank you for this!

I am a big fan of vitamins/minerals and all natural foods. This is a combo I want to try. Already taking the V-D, Multi-V,and V-C, but will add the B-12 and biotine (my hair has been thinning big time and I'm not iron deficient).
flowerlady58
flowerlady58
I also added CIA whenever I can. usually in cereal, yogurt. Try everyday but not always. I have had 8 days of no fatique. I did have a little body ache flare up sat. took alieve, turned on my electric blanket and slept for an hour or so. That always makes me feel better. But at least not having the fatique. Today I feel good. Everyday is a blessing when you feel good.
deleted_user
deleted_user
I take 250 mg acetyl-L-carnitine and 200 mg of alpha lipoic acid every day for fatigue and it makes a huge difference in my fatigue levels. I can go from couch to normal taking it (and back again when I omit it!).

I also take 2000 mg. vit d3 and some b12. Getting my d levels up this winter really helped me survive the darkness and cold.