Nor sure if this is part of being secondary or not, On my left foot the 2 toes next to the big one and a patch around them on my foot has had not feeling and my neuro said he was sure that that was permanate, now on my right foot the 2 toes and a patch by them is numb now. I know that MS normally effects the side of the body that the brain controls and there are lesions on that side, but is it wierd that it is exactly the same on the opposite foot, it don't hurt but it does feel wierd to walk on seeing as I'm just getting used to my left foot. Having this happen without a relapse is that the part of progressive that I will have to get used to? Or is this something that is normal and just happend? As always input is much wanted.
Thanks
Dave
Thanks
Dave
I have permanent numbness in my left hand (fingers) which is a bitch 'cause I play guitar. Anyway, my neuro has told me to live with it, but mine isn't spreading. Have you talked to your neuro about it? The same areas on the other side of the body is weird. Sorry I can't be more help.
I have patches of numbness, mostly from the waist down and in both feet as well.
It isn't really spreading -- there are just times that it is worse than other times.
I suspect mine is permanent too.
Does knowing that you are not alone with these symptoms help at all?
For what it is worth, you are not alone.
I hope you improve. I believe it is possible regardless of what the doctors might say.
I have been having a lot of trouble sleeping since I had that steroid infusion and it has been 3 weeks now, and yes it does help to know that you are not alone when it comes to these kind of things. My neuro told me on my first visit that the numbness was probally permanate. I am used to the numbness in the top of my leg coming and going, but this on my feet concerns me that it will spread further and start to interfere with my walking. Is this what happens with Secondary that something like this happens and is not going into any kind of remission?
Sorry, I haven't been able to access DS much lately (or ANY internet lately due to my technologically-challenged in-laws' basement--ugh. Anyway, I just saw this post. I lost the ability to spread my left toes after my last flare. Sometimes those toes move (twitch I guess) on their own, but I can't spread them at all like I can my right toes. It''s the same in my left fingers. I flunked the neuro test where you are supposed to spread your fingers while the dr. pushes against them to stop you. I can't do that at all. I can totally relate. Neither my hand nor my foot have recovered even after steroids, and I suspect also that this is permanent for both. Since I'm still technically R/R w/ mild secondary progression, I'm not sure how the progression relates to this....I don't feel like I have relapses followed by periods of feeling fine anymore. I just feel different degrees of uck every day, and different symptoms at different degrees of uck daily. BIG HUGS. Hang in there. You are DEFINITELY never alone.