Hello everyone,
Well my story is rather complicated.... IVe been having issues related to MS almost all of my 20s but I didnt realize that it wasn't normal; for a long long time. Lets just say its been a really long 9 years...I was made to feel crazy and it was all for attention and after so many misdiagnoses... It wasnt until my husband and I were dating and he spent enough time with me to realize that the things I was struggling with on a day to day basis were very out of the norm. Sadly, I dont have and havent had much family support, I am so thankful for my husband. Hes my angel and my blessing and my biggest and only advocate. God has also blessed me with wonderful friends and MS support here :) I was originally diagnosed with a bowel disease about 4 years ago...I never felt like I got better and the medication did nothing to even touch my other symptoms. Little did I know the other symptoms I also was having were not normal...little did I know it was MS hugs...which explains why all testing of abdominal area kept coming back ok. Little did I know it was MS hugs... During this time I worked so hard and put myself through college to become a special education teacher. Yet, i battled my health the entire way. It took my 8 years but I did it! :)) My symptoms have sort of been progressive...it seems with each flare the last 6-7 years its slowly gotten worse and worse.... It started out just being tired all of the time with occasional aches and pains etc etc... My symptoms... Now I am literally bed ridden and have to use a wheelchair anywhere I go thats outside of the house because I get so so fatigued and my muscles get so tired and weak. I have headaches and sharp pains in my head. I get numbness very often and pins and needles in my hands and feet. I have also have had weird hives and rashes and severe severe heat sensitivity. I mean very severe. The apartment has been permanently set at 65 or I can't function even a little. ..the back of my head neck area hurts quite often. My ankles give out on me sometimes and after sitting for long periods of time I have trouble walking at first or for long distances on my own period. I also get entire body shakes like its 30 degrees outside and they randomly come and go...I have muscles twitches and muscle spasms..I also get really sore legs and muscles even if I didnt do much. I also have trouble picking stuff up occasionally which is random ...like fine motor movements and sometimes I talk really slow but Im not intentionally doing it...very bizarre. I also bump into things easily and randomly and sometimes when I am trying to touch something I accidentally hit something else and it makes me think, did I just mean to do that?? I also get really really bad hot flashes where I feel like been cooked...literally. I also have the low grade fevers off and on. I also have frequent urination, I always joke because I know where all the bathrooms are of the places i frequently visit lol