Scleroderma Support Group
Scleroderma is a rare, chronic disease characterized by excessive deposits of collagen. Scleroderma affects the skin, and in more serious cases it can affect the blood vessels and internal organs. The most evident symptom is the hardening of the skin and associated scarring.
I had difficulties with severe constipation for a while too. I have Dermatomyositis with overlapping Scleroderma. My DM effects all the muscles in the body. The intestines are muscles too. My intestines are slow to move food through my system. I eat bran cereal, prunes, and cruciferous veggies like sauerkraut, brussels sprouts, broccoli, cabbage, etc.. and this has been helpful to assist my intestines to move food.
I also eat several small meals each day instead of three larger meals. I will avoid that horrible bloated feeling, and food moves better too with smaller meals.
I know you probably also experience bloating and back up of liquids after drinking water too. I must drink a lot of water daily. I take small sips over several hours sometimes to avoid that terrible bloat.
I take an OTC lactobacillus that is in the refrigerator at Walgreen's pharmacies. Just go to the pharmacy and ask for the refrigerated pro-biotic. I find the lactobacillus to be a good product for me. The pro-biotic does need to be refrigerated at home too.
Not to be discouraging, but a pro-biotic is not going to help much if your intestines or stomach are getting stiff. Scleroderma will stiffen up organs in the body too.
My gastroenterologist ran a gastric emptying study on my stomach. It is a painless test where I had to eat an egg with radioactive iodine, then I laid down for an hour while the x-ray machine examined how quickly my stomach moved food. My test came back normal. I was grateful for the normal results, but it did not explain why the bloat, excess GERD, and the slow movement of food. I came to the conclusion that the problem must be slow intestines and not slow stomach. The small meals has made a big difference for me.
I hope this helps. We are all different. The website Sclero.org is helpful too.
I somehow missed your reply, That really stinks. I also have MCTD. It's a pain to never know what is wrong with you.