Rhabdomyosarcoma Support Group
Rhabdomyosarcoma is a type of cancer, specifically a sarcoma (cancer of connective tissues), in which the cancer cells are thought to arise from skeletal muscle progenitors. It can also be found attached to muscle tissue, wrapped around intestines, or anywhere, to include the neck area. It is most common in children ages one to five, and teens aged 15 to 19.
Tell us about your personal experience with Topotecan as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
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Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
mush air as you comfortably can. Next
hold the inhaler level, open it and
push the lever, inhale as deeply as
you comfortably can while keeping the
inhaler level. Hold the medication in
your lungs for 10 seconds or more
before exhaling. When we forget to
do this we find that our asthma will
get worse. With the "Advair" I call the
puffs "sucks" because one has to
suck the material out of the discus.
A lot of inhalers have propellants to
atomize the medications.
for a minimum almost all inhalers
whether they have a propellant or
not. When in doubt hold the medication
in your lungs for 10 seconds or more.
for 10 seconds. the "10" was left out of
last post.
There are a lot of web sites where
you can get these materials.
Long-Term Control Medications
Type of Medicine
Generic Name
Brand Name
Possible Side Effects to report to your doctor (not a complete list)
Long-Acting Beta2-Agonists: Inhaled or Oral Bronchodilators
albuterol sulfate
ProAir HFA
Proventil Repetabs (tablet)
VoSpire ERTM
increased heart rate
* palpitations
* nervousness
* sleeplessness
* headache
* nausea
* vomiting
* tremor, shaking feeling
formoterol fumarate
Foradil Aerolizer
salmeterol xinofate
Serevent Diskus
Combined Medication: Inhaled Bronchodilator
Budesonide + formeterol
fumerate
Symbicort
ipratropium
bromide + albuterol sulfate
Combivent
Duoneb
flucticasone propionate + salmeterol xinofate
Advair Diskus
Refer to Side Effects of each individual medication
Methylxanthine: Oral Bronchodilators
Relax and open airways; stimulate diaphragm and breathing
theophylline
Aerolate III
Aerolate JR
Aerolate SR
Choledyl SA
Elixophyllin
Quibron - T
Quibron - T/SR
Slo-bid
Slo-Phyllin
Theo-24
Theochron
Theo-Dur
Theolair
Theolair SR
T-Phyl
Uni-Dur
Uniphyl
* stomach upset
* nausea & vomiting
* restlessness
* rapid heart rate
* wakefulness
* irritability
* dizziness
* palpitations
Corticosteroids: Inhaled
Potent anti-inflammatory
beclomethasone
diaproprionate
QVAR 40mg
QVAR 80mg
*
creamy white, curd-like patches in mouth
*
wheezing
Side Effects that usually do not require medical attention unless they persist:
* cough
* hoarseness dry mouth
*
* headache
* nose bleeds (nasal steroids only)
* throat irritation
budesonide
Pulmicort Respules
Pulmicort Turbuhaler
flunisolide
AeroBid
Aerospan HFA
fluticasone proprionate
Flovent
Flovent Diskus
(50 mg; 100 mg; 250mg)
Flovent HFA
mometasone furoate
Asthmanex
triamcinolone
Azmacort
Mast Cell Stabilizers: Inhaled
Anti-inflammatory or may be used before exposure to known trigger
cromolyn sodium
nedocromil sodium
Intal
Tilade
*
increased coughing
*
wheezing or shortness of breath
Side Effects that usually do not require medical attention unless they persist:
* coughing
* skin rash/itching
* headache
* sore throat
* nausea
* abdominal pain
Leukotriene Modifiers: Oral
Anti-inflammatory
zafirlukast
zileuton
montelukast
Accolate
Zyflo
Singulair
* headache
* nausea
* diarrhea
* infection
Quick Relief Medicines
Type of Medicine
Generic Name
Brand Name
Possible Side Effects to report to your doctor (not a complete list)
Short-Acting Beta2-Agonists: Inhaled or Oral
Bronchodilators
albuterol
Accuneb
Proventil
HFA
Ventolin
HFA
* increased heart rate
* palpitations
* nausea
* vomiting
* nervousness
* headache
* sleeplessness
* tremor, shaking feeling
pirbuterol acetate
Maxair
terbutaline
Sulfate
Brethine (tabs only)
levalbuterol
hydrochloride
Xopenex
Levalbuterol tartrate
Xopenex HFA
Anticholinergics: inhaled Bronchodilator
Ipratropium bromide
Atrovent
Additional Medicines
Type of Medicine
Generic Name
Brand Name
Possible Side Effects to report to your doctor (not a complete list)
Corticosteroids: Oral
Most potent anti-inflammatory
May be used for short-term management or in long term control
dexamethasone
Decadron
Deltasone
* decreased or blurred vision
* frequent urination
* skin rash
* increased thirst
* mood changes
Side Effects with high-doses or long-term use:
* acne
* back or rib pain
* blood or black tar-like stools
* brittle bones
* cataracts
* fever or sore throat
* frequent bruising
* headache increased perspiration
* indigestion
* irregular heartbeats
* redness of face
* menstrual problems
* muscle cramps or weakness
* nausea or vomiting
* ongoing infections
* persistent stomach
pain or burning
* puffy face
* slow healing of cuts and bruises
* swelling of feet
* unusual tiredness
* weight gain
Side Effects that usually do not require medical attention unless they persist (may appear and then go away during treatment):
* increase in appetite
* insomnia
* nervousness
* restlessness
The most common side effects in patients who received XOLAIR in clinical studies are listed below. This is not a complete list of all side effects reported with XOLAIR.
* Injection-site reaction (45%)*
* Viral infections (23%)
* Upper respiratory tract infection (20%)
* Sinusitis (16%)
* Headache (15%)
* Sore throat (11%)
Prednisolone
Pediapred
Prelone
Hydrocortone
Medrol
hydrocortisone
Prednisone
Prednisone
Prednisone (various manufactures)
Prednisone Intensol
Subcutaneous Injection
XOLAIR is a different kind of allergic asthma medication. It's the first asthma treatment that works by blocking immunoglobulin E (IgE), an underlying cause of allergic asthma symptoms.
Omalizumab
Xolair
Possible Side Effects listed for each medication is not complete (i.e. does not list every possible side effect), check with your Doctor or Pharmacist.