Pulmonary Fibrosis Support Group

Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothelium, basement membrane, perivascular and perilymphatic tissues. The term DPLD is used to distinguish these diseases from obstructive airways diseases. Most types of DPLD involve fibrosis, but...

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brunob 02/03/2011

I'm looking for ideas for exercise that are not too strenuous. I am on 1L at rest and 2L on exertion.
I have a pair of snow shoes that I tromp around the backyard in.....I can make it around once. We have a double deep lot.
I am going in April for the assessment for a lung transplant and my doc would like me to drop a couple of pounds, and I want to keep my strength up.

Thank you for any suggestions

Smileyface26 02/04/2011

I am gonna give you advice as I would my patient's. Also, this is how I strengthened my lungs (though they are not back to normal, but I did get my SpO2 levels up and my heart rate is down, but not back to normqa yet).

First you need to but a pulse ox- I purchased mine on the internet. You need to make sure you stay above 95% while you are working out.. Do you have a treadmill.. this is by far the better method at this time for you due to the lungs.. it is easier to control the workout and monitor the workout. You also have to monitor your heart rate. I would be glad to discuss the workout I did.

brunob 02/08/2011

I have a pulse ox meter. I would love to know what you did. I don't have room for a treadmill and I can't walk outside unless I drive into town......my road is way too busy. I have a wii fit but find it hard to come up with a program so far.

Thanks
Beth

deleted_user 02/14/2011

My husband just completed all his testing for transplant list.. We are at a stand still right now, we found out he has prostate cancer, so we will see a specialist in March, and see where we go from here.
Even if you just walk around the inside of your house it would be better than none at all. My husband walks up and down our driveway, and uses our treadmill on occasion. So far he is only on oxygen when mobile, 3L, If not on it his oxygen drops to about 85, he monitors it with his pulse/ox meter

Kathy

deleted_user 03/03/2011

I would be very interested in how you strengthened your lungs...I have just been diagnosed and scarring is mild, I also have lupus but have been exercising to try to help that condition. I know so very little about this disease so am thankful that I found this group!

deleted_user 03/04/2011

Arlies, you can also talk with your PF doctor about getting into pulmonary rehab ... it will help with breathing techniques to get the most out of each breath and help keep your heart down and your pulse ox up.

deleted_user 06/16/2011

PersonallY I love Aqua fit...enjoy it very much. I attend a Aqua Fit class at my local JC and it is great! I put my 02 on the side of the pool and have a 25' hose. I try to keep at the edge of the group and of course I cannot run up and down the olympic size pool but I do the best I can and have lots and lots of fun. The water is wonderful! It makes me feel like I am 20 again!

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