hi ya well i wish you well and hope things dont go that bad for you.let bus know what they said,but crossing my finger for you xx

Thank you Chelly..just got back from doctor, He says my latest X-ray was slightly "clearer" than the previous one (In August) and he'll maintain the medication schedule as it is. He didn't book another appointment until thre months time, advising me to call him, of course, if there is anything I am concerned with.
Thabnk you for your kind wishes

Hi.

What medication are you taking?

Thanks, Sue

Hi Sue: My primary medications are Prednisone (takne 15 mg daily) and Imuran. Had been down to 10 MG but the doctor changed me back to 15 when I started to slip a bit.....that was back in August.
Cheers
.

Hi Oxfordns, Glad you had an improved report.
Now if you can only keep getting better ones
we would all be pleased. I too had an improved report which the dr. said was unusual.
I have been taking Serracor (food supplement)
that has two enzymes that are supposed to stop
the manufacture of fibrin in your body and to
dissolve the scar tissue or at least make it
pliable. I have no idea what caused the improvement but I am continuing taking it.
I'm continuing to pray for all of us in this
shaky boat. Best wishes to all.

Thank you Sawdusty2....I wish nothing but the best for everyone here (and beyond). I hate to see people ill.
May I ask if the Serracor is being taken on your own initiative and if there is any possibility of negative interactoon with doctor-prescribed medication??
Cheers
Oxf

Hi; Serracor has not interferred with my other meds. I'm taking meds
for diabetes, arthritis, depression, high chloresterol, and p.f.. Perhaps
the combination is what keeps me going. Also taking vitamins, and
CoQ10 and melatonin. I have an appointment with an endocrinologist
to see if I'm taking each at the right time. It promises to be an interesting office visit. I'll you know how it turns out. Check out Serracor on Biomediclabs.com for specific information.
Best wishes for better health.

ood morning Sawdusty2: After reading your comments regarding Serracor, I mentioned it to my wife who,in turn,. mentioned it to our pharmacist. The pharmacist actually did some research and SHE suggested something called NAC-N-Acetyl-Cysteine.....so I may give that a try. What have I got to lose..........she says there is no interaction with any of my current medications...............
cheers

Hi O... My pul. dr. also suggested the same as yours. I ordered some and will take it along with Serracor. Biomedicslab website
had one medical doctor's report on Serracor (old name was Neprinol)
The M.D. was so pleased and surprised it worked that he wrote the
endorsement. I called his office and left a message for him but he never responded. The NAC-......cysteine is under research and testing in Austrailia. I'll look it up and let you know how to find it on
the internet. Best wishes for better days (and nights)

Howdy...will look forward to any information...
Good to hear athat you have been doing quite well of late.....have been feelimng "not too bad" mysel;f of late.....sure hope it continues.
cheers

Try Immunocal somebody please try it. Look it up on the internet listen to the testimonials.

Hello and welcome to this group.. I have started to take N.A.C. Asked my pharmacist for some recommendations; she said this might be useful....
Hope it is/
And good luck to you.......................chollins

Hope your tests gave you some positive hope. I would like to caution you to research tests prior to giving consent to procede so you'll know the potential risks. I recently had a bronchoscopy with biopsy of my lungs, although I already had a diagnosis this new pulmonologist pushed for the biopsy, there was no need ... I already knew I have an incurable lung disease ... and unfortuntately during the procedure my lung was punctured and now in addition to my original lung problem I now have a second possibly serious problem, a pneumothorax, which requires more worry and tracking by the pulmo doc. I looked it up once I got home from the hospital only to find out it's not that uncommon during that type of procedure. I am doing well on my medication plan though, so am thankful for that. I wish you the best in your experience of this difficult illness and keep the whole DS group in my prayers. Never give up and find the joy in each moment, you are not alone.

My husband had a lung biopsy last month. They did the Video-assisted thorascopic surgery (VATS). A VATS uses a scope (called a thorascope) passed through a small incision in the chest to remove a sample of lung tissue. They made 3 small incisions, one for the camera, the other for a drain and I think the third one was to get the biopsy. He was in the hospital for 5 days. He was diagnosed with Idopathic Interstitial Pulmonary Fibrosis. He is using a couple of inhalers and oxygen when he walks up hills. He is doing very well and his Pulmonary doctor said he caught the problem early and feels he will continue on without any additional problems for a long time.

Take care of yourself!
Sue

Hello folks: My tests were about the same as they had been the previous time ...so at least no particular "worsening". I had lung biopsy done last December while in hospital....small incision through my side in real OR procedure. I know I am in better shape than some people are (glad to hear your husband is doing so well, Sue,. This is not a fun disease, is it Allen? I have read where Jerry Lewis was diagnosed with it nearly 10 years ago......let us hope and pray for a similar "long run"...asw opposed to the alternative.
Thank you both so much for taking the time to comment. It helps to know there are kind and senstitive people who take the time to read and comment.
Regards..oxford