Progresive forms of MS Community Group
I want this to be a forum to discuss openly and honestly about the challenges progresive MS poses. This is NOT a place to down play your severity of synptoms or just MS in general. No more advice that isn't appopriate and no more fear. Monsters live in the dark so lets all shed some light.
Good Morning!Well the sun is shining and my hubby is taking me out this afternoon-gonna be a great day!!don't get me wrong-i'm usually up -i've gone the depression route-not going back!!i've dealt with this ppms for years and i'm doing okay!!i've just reread the literature -and honest not downplaying my symtoms-i've accepted this diagnosis and i'll live with the fact I am healthy despite the fact i can't walk!! WOULD LOVE TO HEAR FROM ANYONE THAT HAS THIS FORM OF MS AND HAS JUST GONE ON WITH THEIR LIVES!!-FARAWAY SHARON
I try to play word games and keep my mind busy. I see some of the Grandkids sometimes, which always puts a smile on my face.
im Mike and i am wheelchair bound but can still walk 100 ft or so before needing to rely on a chair. i was dx with PPMS last Jan. and i cannot find much relief. i have a super wife that is starting to run out of patience with all of this. im a retired firefighter and veteran of the Navy. i bought a bass boat a couple of months ago just to try to get out of the house but its very hard to launch and load by myself but i am determined anyways,,what the heck, i have all day...
I was diagnosed with PPMS in 10/2010. I can't walk much but have had days when I did so much better without a cane. I can't teach middle school anymore. My right hand barely works and my memory is fading...but I am fighting it every step of the way.
1. I juice to fight fatigue
2. I am on the MS Recovery Diet - gluten-free, dairy free
3. I just bought a vibration machine to get exercise in daily
4. I pray
5. I read on everything that I can find on progressive ms
I hope that helps; this sight seems to be what I was looking for