Prader-Willi Syndrome Support Group
Prader-Willi Syndrome (PWS) is a genetic disorder in which seven genes (or some subset thereof) on chromosome 15 are missing or unexpressed (chromosome 15q partial deletion). PWS is characterized by hyperphagia and food preoccupations, as well as small stature and mental retardation. In 2000, the US FDA approved the use of growth hormone treatment for treating symptoms...
Is there support groups for people with PWS? I have it.
I am glad you joined our group. We would like to hear about your journey with Prader Willi Syndrome. Even though this group is small right now, I think a lot of people check out the group before joining. Hopefully some other folks who have Prader Willi Syndrome will join our group and share their stories so parents and family members can learn more about the syndrome
How are you doing? Please let us hear more from you and best wishes to you and your family.