well with MS anything is possible. Also it doesn't affect everyone the same. So there is no saying whats going to happen or not happen. I would google Multiple Sclerosis symptoms and that will give you an idea of what could happen...there are just so many to list...from minor ones to big ones.
But relax and stay calm ....stress can bring on symptoms...like tremors and shaking.(at least for me)
Also eat healthy and take your meds....
hugs
Kim

Hi Morgaine thank-you very much for your reply! Yup I've read alot on MS..when I was first told I had it, I felt like I needed to buy 100 books and stay on internet reading about. lol lol But that soon changed cuz it kinda freaked me out. So I thought I'd just kinda roll with it, and refer to my books only when I really had to! lol Crazy I know but thats me I guess. Well ty again take care:)

Hi there,

I have had RRMS (at least dx'd) for a little over 4 years now, and it is a really weird thing! I have had experienced my share of ups and downs, and nausea has been one of the symptoms. I don't really relate nausea to "worsening" of my MS, but I feel that it has something to do with getting stressed out and possible my multivitamin. It is really hard to tell you what you will experience, because like Morgaine71 said, it doesn't affect everyone the same.

When I was 1st dx'd, I tried my hardest to disprove that I had MS mostly because I was scared of what would happen to me and didn't know what would exactly happen. I actually went to different doctors and pretended that I didn't know what was wrong with me just to see if everyone found the same thing! Well, eventually they all did say MS, with one saying she thought it must be Fibromyalgia only because she never thought to check for MS or have an MRI done (silly doc;~) I have had some obvious progression along the way and relapses that have not fully been recovered, but in the long run, I am still here. The one thing that I wish I had done when I was 1st told I had MS, is not be a chicken about taking shots and gone on a therapy. I was so scared of needles that it took me almost a year before I went on Copaxone. My neuro now says that I am progressing to SPMS (secondary progressive) and that my MS should have been treated more aggressively from the start. Well, I wish I would have had a neurologist at that time who would have talked me into therapy! I hope you will consider taking a therapy if you aren't already on one. I have peeps in my MS support group who have taken a shot from the get go and now 20 years later, they are just now starting to have trouble with their gait! There is so much I could go on for days! Overall, I feel that I am still doing pretty well. The only real trouble I have is when I overdo it! For example, I took my kids to the beach yesterday for 2 hours and then went to volunteer at the MS Walk here in St. Augustine with my wild 6 year old boy in tow! I was worn out and could hardly walk by the end of the night. Today, I am tired and couldn't hardly get out of bed. I will recover in a couple of days, but we MSers can't go full force like we used to! We have to remember our limits so not to stress our bodies out. My neuro now (good doc) put it to me like this: When I wake up in the morning, I have about half of the energy as a regular person. Try to conserve that energy for the things that matter the most so I don't wear myself down and aid in having a relapse! I almost always think of what he said, I just have to stop myself from doing everything that I want to be capable of doing.

I am really sorry about this long message. There is just a lot that can be said.

~Relax~Prioritize~Keep Healthy~

Susan

I was diagnosed with RRMS in Sept 1995. I am still RRMS, so I would say it is very possible to not progress to a worse form. Do your best to take care of yourself. Eat well, avoid STRESS, and take your meds. God Bless, and good luck to you.

As an MS Support Group Leader in the State of Oregon, I refer to MS as a snowflake disease. Just like there are no two snowflakes alike, there are no 2 MS'ers alike. But to address your question, a person can be rrms, and also be secondary or primary progressive, according to a recent luncheon conversation I had with Dennis Bourdette, the Dir. of the OHSU MS Center where Dr. Swank used to be. This conversation was the first time I had heard it put that way, and was in the context of whether someone could be approved for Tysabri. I have a member of my support group who is 88 and walks to our meetings. Over 60% of the people with MS never need any form of mobility assistive device, including a cane. I also had a member who was in a wheel chair, and improved to the point that she is now an airline stewardess. Another friend was a wheel chair user, and then became a marathon runner. Anything is possible, so do not try to plan your life's future according to your MS diagnosis. Just live life and enjoy!

About RRMS, I was diagnosed well over 10yrs ago. Have never done CRAB drugs, but have devised my own alternative plan over time.
Just this past couple of months I've begun low dose naltrexone. At 3mg.
my doctor says it is almost homeopathic.
One important thing I've done for 20yrs is get B12 injections weekly.
I'm thinking each case of MS is different & mine is benign, thankfully.

HELLO EVERYONE, I would just like to thank each and everyone of you for your responses. They have all been very helpful to me!!!! May God Bless All of You :) And thanks so much again!!! Take care All, Linda

I have RRMS but I dont know how advanced it is in MS. Ive been diagnosed about 5 years but I think Ive had it longer. According to the side effects I would say Ive had it about 15 years. I have a lot of nausea and headaches not to mention all the other pain and problems I have. Mabey this will help you. I hope it will.

Most people diagnosed with MS are diagnosed as relapsing-remitting and after couple of years, the diagnosis may or may not change based on the progress of the disease. This is due to the unpredictable nature of the illness. Unfortunately, most people with RR MS will progress to a worse kind of MS, bur that doesn't necessarily happen to everyone.

I believe once you have lesions, hence, multiple sclerosis, the body tends to progress. Just like Niagara Falls. The falls are receding let's say 7mm a year. Eventually they're going to be further and further back into the states and canada. MS is the same way, except each of us has a different rate of progression.

IN other words, Niagara Falls will never start to ADD land underneath, nor will it ever stop receding. Takes a long time to go even an inch though.

If your body is in poor environmental conditions and you keep having attacks, you'll progress more than if you had a few years of attacks and your environment changed, you may stop having attacks but still progress. If you take something that would slow or 'stop' your progression, you may still progress, just very very slowly.

Nobody really knows.. it's just the way I understand it now.. subject to change with new info ;)

JMHO, OC, YMMV, HAND ;)

I was diagnosed with relapsing remmitting m.s 10 years ago but i had 1st symptom 15 years ago. Hindsight is very good and one thing i regret is i should have stopped worrying over the slightest thing that i often remembering saying like "THAT MUST BE THE MS" It was'nt and the MS nurse specialist used to say
"don't put everything down to the MS"
Just get on with your life and don't put anything off just because of the diagnosis - even having children
In fact a close freind of mine who is a sugeon told me to go away and have another kid because the disease can be so begin.
15years later and i'm still mobile (all that morrying for nothing)

oh I agree about the hindsight...I had symptoms when I was 19 and didn't realize it. Now I know what it was. But then I was to young and uninformed to know what it was. Now I can say oh well that is when I first had symptoms. I would get intention tremors and talk backwards. I thought it was just the way I was. I didn't realize it wasn't normal. Now I do. I also agree with not every problem we have is from the MS. However with that being said....colds and what not can affect MS...thats why its important to stay healthy!
hugs
Kim

You know, one of the lessons that I learned recently about assuming that every problem is MS, is that it will keep you from seeing the doctor for problems that can be fixed. For example, I was having a lot of problems with my arm, I had excrutiating pain whenever I lifted my arm above a certain level. I assumed it was MS, didn't bother to do anything. Turned out it was a "frozen" and inflamed shoulder joint, but found out only after my bi-annual appt with my neuro and he said, "THAT'S NOT MS" and sent me to PT, I discovered it was perfectly curable. Silly me.