Just thought I would add a positive note. I have been fighting a flare up since early April & 2 courses of oral steroids which I am gradually getting off. I have managed to maintain my 3 days of 5 hours work (it is actually 10 hour day by the time you include travel & breaks) & rested at home on off days & slept on the train going to & from work. I think I am finally coming through it all, down to 5mg a day now.
My positive target through it all has been I have this week off work & I have been determined to be well enough to go away. We are going away in our caravan for 5 nights to a beach area (even though it is almost winter) & I feel well enough to enjoy it. We are taking my mobility scooter as well as the walker & plan on lots of rest & relaxing so I aim to come back fully over this crap & ready to face the world!
I will be off line for the next few days so take care of yourselves & no matter how hard it is focus on something good/positive you want to do & aim for it.
Hugs to all