Hi Trevor. I had lots of twitching fir several months at the beginning. Twitching and numbness are fairly common with our diseases. The shaky bit I think comes from the prednisone and the muscles are weak. Try to walk each dayto rebuild your strength but don't do anything excessive to damage more muscle until your Rheumatologist has told you the inflammation is dropping, don't research the Internet, it nearly drive me potty and very little of what I read came to pass, I also don't have the medical training to interpret this stuff so made a deal with my doctor not to do it and he would answer my questions. This will take time Trevor, it's not like a headache where you take a pill and get better. You will need patience and calm as well as your good doctor. Best wishes. Autumm

Hi Trevor, It is so easy to jump to conclusions and consider the worse or "what if it is this..." try to relax. The beginning of this DM has many weird type feelings. Do write down your symptoms to discuss at the doctor, but do not worry yourself sick.

High doses of prednisone will have some side effects that go away after tapering down. The doctor will determine when you should taper. I agree with Autumn that twitching and numbness has been experienced by many people at the beginning of DM.

You ask a good question about the weakness and whether it will go away. This disease is different for each person. The important thing is to work with your doctor. Write down your questions for each appointment. Get your meds at a dosage where you are seeing some improvements and then start your taper when the doctor decides it is time to taper.

My personal goals with DM is to feel well on a daily basis. My doctor and I work together. We look at my blood work and adjust medications up or down as needed. I do get weird and scary pains from time to time, but I have a Trust in The Lord which helps.

I hope this helps. Best wishes.

I use to get a lot of twitching before immunosuppressants. I still have numbness in my toes and sometimes my lower legs. I have PM not DM so not sure if this is helpful? Good Luck.

My legs used to twitch a lot and jump uncontrollably when I tried to rest, until I started vitamin d. My hands and fingers are always swollen and my ring and pinkie fingers tingle all the time. They grow numb if my elbow area is touched for a few minute, such as when leaning the elbows on a table or resting them on chair arms.