Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
I've found that when I sleep 12+ hours a day, my rash is much better. I was experimenting with gluten, but that doesn't seem to be a factor, it's how much rest I get. And, my panic attacks also vary depending on how much sleep I get.
The problem is, I start feeling 'too tired' after being awake 5-6 hours. How envy those who only need to sleep that much!
Do you sleep a lot? Do you find it decreases your symptoms?
The problem is, I start feeling 'too tired' after being awake 5-6 hours. How envy those who only need to sleep that much!
Do you sleep a lot? Do you find it decreases your symptoms?
I have PM since two years.One of symptoms of PM is tiredness, especially when my CK are high I sleep a lot. Very often I take a nap during the day for 1-2 hours.I have noticed that after a good sleep I feel better.My pain is less severe,I'm more awake and I have more energy.I think that a good rest is very important .
Could tell me for how long you were trying gluten free diet?Did you cancel gluten totally from your diet?
I'm trying do it as well but i'm not very strict...
Now I'm eating things w/gluten again, though not as much as before because my cabinets are still full of gluten free products. Quinoa pasta instead of wheat, rice chex instead of cheerios, etc.
If I lay down for a nap, I'm out for 2 hours minimum. And I can't be awake for more than 6 before I'm feeling tired enough to fall down or have a panic attack. It's so frustrating! and I can't establish a good sleep schedule cuz of the times I need to be awake don't fit into a good schedule. 6-10pm on Mondays, 3-7pm on Tuesdays, 1-5pm on Wednesdays, etc.