I've gotten to the place where I get really stiff if I sit with my legs down for very long. I hadn't realized I prefer to move around and put my feet up. That said, last weekend I drove 5 hours each way to Southern Utah (Zions) and was okay but got pretty stiff.

I think everyone is different and learning our limits (and adjusting to the ever changing situations) is always interesting. I hope you are able to get back to driving when you want without issue. :-)

Driving can be uncomfortable. Walking too much is also uncomfortable. I used to like wearing jeans but now I do better with long skirts because jeans can be uncomfortable. There is something about leg irritations with DM/PM. I also have days when my legs feel heavy and I wonder why. This disease is always making me feel like a hypocondriac when I do not want to be one. I hope your legs will feel better. The pool sounds inviting.

I have also come to understand that my legs prefer to stand and walk around. If I can't get up every few minutes my knees and lower legs hurt more. Many nights after work when I have had to sit for long periods of time, I am normally in so much pain that I just go to bed or sit on the sofa with my feet up. I don't wear jeans or any type of pants. First it is too difficult to put them on, plus I can't handle the weight on my thighs. I can only wear light weight fabric.

I am going to drive back over there next month to take my grandsons to Aquatica water park, but I will take short breaks. We won't be in a hurry. I refuse to let this disease stop my fun.

You have such a great attitude, Brenda. I'm so glad to hear that you aren't allowing this disease to stop you. Hopefully you and your grandsons will have a wonderful time at the water park next month.

Sitting for long periods of time is my enemy also. And I, too, must sit at a desk for my work. Somethings that helped me are: (1) raising my "desk," (2) using a stool instead of a chair, and (3) moving or changing position frequently. This configuration allows me to sit, stand, or lean while working. Also, when driving, I stop a lot for breaks. Hope this helps. Blessings and best wishes to you!

Anytime that I am with my grandsons who are teenagers is great. They don't see my limitations and sometimes I forget about them and do things that I wouldn't normally do. They are going to love the stops along the way because we will be stopping at stores or restaurants along the way and as with all teens they can always eat something. I just love being with them

Now that my Rheumy has given me the okay to fly, I will be flying them out to Phoenix next month to stay with my their dad, my son.