Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
Hi everybody ... I've just been feeling so down lately. I'm blaming it on Imuran, the doc had me increase it by 50 mg. It was too hard on me so she had me decrease back down by 25 mg for a couple of weeks and if I tolerated it, go back up by 50 mg again. So, I went back up by 50 mg as of Monday night. I may have already told you this already, lol, it is late and I don't remember for sure.
I just don't feel like myself since the adjustments. I seemed to be ok at 100 mg. I'm feeling tired, achy, stomach aches, slight headache. My main concern though is feeling down and grumpy.
If I only need to put up with this for a couple of weeks while I adjust, then ok, I'll do it if it is going to continue to make things a bit better. So far this week I haven't been able to shower and have been in my pjs and robe. Showers are hard for me anyway, but I always try to get at least 2 a week and wash up in between. I do need to get a shower chair. I need to make that a priority, along with all of my other priorities, lol I feel soo frustrated that I don't have the energy to do anything. It is all I can do to just take care of me, fix my meals, go to the bathroom, etc. If it requires energy, it feels like a huge undertaking. It still blows me away how much energy the simplest of tasks can take. Even going to the bathroom, or making myself a sandwich can be a challenge.. When I feel like this, all I want to do is read, watch tv, and play a little solitaire on the computer.
Ok, well it is really late and I need to get my beauty rest, lol. Thanks for reading this.
Gentle Hugs,
Sheri
I just don't feel like myself since the adjustments. I seemed to be ok at 100 mg. I'm feeling tired, achy, stomach aches, slight headache. My main concern though is feeling down and grumpy.
If I only need to put up with this for a couple of weeks while I adjust, then ok, I'll do it if it is going to continue to make things a bit better. So far this week I haven't been able to shower and have been in my pjs and robe. Showers are hard for me anyway, but I always try to get at least 2 a week and wash up in between. I do need to get a shower chair. I need to make that a priority, along with all of my other priorities, lol I feel soo frustrated that I don't have the energy to do anything. It is all I can do to just take care of me, fix my meals, go to the bathroom, etc. If it requires energy, it feels like a huge undertaking. It still blows me away how much energy the simplest of tasks can take. Even going to the bathroom, or making myself a sandwich can be a challenge.. When I feel like this, all I want to do is read, watch tv, and play a little solitaire on the computer.
Ok, well it is really late and I need to get my beauty rest, lol. Thanks for reading this.
Gentle Hugs,
Sheri
Pace yourself throughout your daily life. Even if it's just putting a load of laundry in the washing machine, that's one thing down. Also, if there are other people who are willing to help, accept any help given to you.
We are all here for you and we all know how frustrating it can be.
Smile!
Are you just on Imuran at this point? I know that with some meds, you do need to give them a few weeks to see if the side effects you are experiencing are just temporary or bad enough that you need to try something else. Sometimes you just cant hang in there long enough to find out and thats ok too. I've been there with other meds before.
It really is amazing how much energy the everyday life tasks take. I tell my husband that all the time. It seems like all I can do most days just to do the "basics". I'm starting a new job next week and that really scares me. I think of how hard it is just to do little things around the house let alone adding a part time job onto that. But I'm hoping maybe in the end, it will be good for me to have a sense of "purpose" again. This disease can really consume you on many levels.
Try to hang in there. We are all here for you. :) -Angie