Polymyositis & Dermatomyositis Support Group

Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.

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freelee
freelee
The deterioration of my arm and shoulder muscles has now caused my neck to become weak and holding head up is painful. The physio has given me some exercises and lots of explanation ( not much of which I took in, I must say) but can't help thinking were is this all going to end. I think I have seen 5 different physios at the hospital in 2 and a half years for different pains each time. Are your pains and weakness moving to more parts of your body?
deleted_user
deleted_user
I have to say my pains and weakness start in my entire body. I understand the troubling of its slowly moving.
lexisgirl
lexisgirl
Funny you should bring this up. Over the weekend, I got really sore in my neck and shoulders and it hurt to hold my head up. So I didn't. You might want to check your pillows and make sure they are supportive. Also, check where you sit most and make sure you have head support there.

I do think the pain can move around. Keeping muscle strength really seems to be the key to keeping it to a minimum.
brendacaytonwhite
brendacaytonwhite
I haven't had pain in my upper body, but my fingers have been numb since having my CT scan last week, but I think it is due to how tight they put the tubing around my arms to draw blood.

I have an appt for pain management next Tuesday. I believe they are planning to give me some type of device to use. Whatever I am game right now.
nanny1611
nanny1611
I'm with Lexis. Funny you should bring this up. My neck and shoulders have been bothering me a lot this past month, and I am also having trouble holding up my head. I thought my problems were due to an increased work load, requiring me to work more on my computer. But, who knows. And to answer your concluding question, yes my pains and weaknesses have advanced, especially this past year (although the pain level is more controlled). Best wishes to you.
trpt1
trpt1
Freelee, My pain is in my legs and it seems like it is getting worse. I am also having more difficulties with swallowing. I seem to be talking with an occasional lisp. It does seem like pain & weakness is moving around. I now wonder if the weather could have some effect? I hope your pain goes away.