And that's what it means to be a human who suffers from chronic illness.

I have been feeling this way all winter unfortunately. And I am normally so positive.

Just try to feel your feelings, don't judge them, and let them go. You don't want to keep that stuff inside.

I surely hope tomorrow is a better day.

:)

You're definitely not alone in this. This is a constant battle that many of us go through and its okay to get into your feelings. If you always felt happy and never felt a bit of frustration or sadness, then I would question whether or not you were really human :)

Stay strong and encouraged!

I share your pain. Being up able to do the simply things like walking and shopping does get you down. I became a grandmother last year and it really hurts not to be active. Christmas time was hard because I couldnt get out a shop for him like I wanted to but I became the shopping gueen online. Shop for an outfit on line for your grandsons christening, what a wonderful event that will be. Check with your doctors and see an occupational therpist and see about getting a mobile chair.
Remember that ups and downs a going to come and go but each day that we can get up and look up then we know GOD is on our side. Be blessed...

i'm so sorry you have to deal with all this freelee but you're definitely not alone. i think we all hit that wall and it always seems to come out of nowhere. you're in my thoughts and prayers

big hugs!
nicole

I know what you are going through, when my DM was bad i was around 9 years old and could not go outside to play with friends and do much at all. it was in the late 70's there were no video games or stuff like that to keep me occupied. I was put in a wheel chair and that helped alot to get out, as well as build strength. it would have been nice to have a support like this. just think positive and make the best of everyday.

We are all here for you...as we can all relate to having those dreadful days where you are down and out on top of having the disease itself. If you need to vent, swear...whatever..this is a good place to do it. God knows I've done enough of it ;)

Some days are bad, but there are always the good days to look forward to. This is the right place to blow of your steam, since everyone understands and has faced similar situations on their myositis journey.

Whenever I feel bad, I simply recollect the times when I have overcome this disease to lead a normal life. I was dx at the age of 14 and used to be very active in sports. But with the dm onset, I was wheel chair bound for an year of which few months I was fed through a gastro tube. After overcoming that experience I went ahead and completed graduation, and later a master's degree.

Today I am leading a normal life and spend 12 + hours working, traveling daily. There are bad days, but each path has those speed breakers & winding turns !

My best wishes for good days ahead !

"Tough times never last but tough people do "

The winter months just SUCK! The worst part is...we wouldn't be any happier in a tropical setting because the sun and heat would cause us to flare!!!

When I feel like crap...I watch a funny movie, or indulge myself with a glass of wine (yeah...I know i'm not supposed to, but hell, I already feel like crap!!), or play a game with my daughter. I have more good days than bad...I am sooooo fortunate...I know this. My doctor tells me all the time I look so much better than my labs say I should. Sometimes I just sit at the computer and play mahjong all day! I really try not to let it go for more than about a day...otherwise...I really get into a funk and my family suffers.

I agree though...putting on a brave face and a smile every day is challenging sometimes. I want to just yell at the top of my lungs...why!!!!!??????? It pisses me off that I even have to deal with this...but...mentally, i'm a much stronger person now than I have ever been. I have more compassion, empathy and understanding to the human race in general. I also though can be a bit more cynical too...oxymoron I realize...but, ...anyway...I work in the medical field and I could go on for days how the abuse of "the system" really gets to me!!

I understand...I'm sending some positive energy your way. Go play some mahjong!!! LOL...((((((((((((((((((((HUGS))))))))))))))))))

Thank you every one - you rock ! My 19 year old found me crying and hugs later he drove me to a local, easy to access clothing store and helped me choose a dress. My whole world changed after all your positive words and his help. I will never say a bad thing about my teenagers again. Also seeing the sad scenes in New Zealand earthquake makes you happy to be alive.

Freelee, thanks for reminding me that there's always someone worse off than yourself. We try to stay positive as much as we can but wouldn't be human if we stayed that way. God bless you and chin up Girl!

Love and Hugs Always

Freelee, try to keep your chin up and remember there are better days coming.