I am sorry you aren't feeling well. I suspect it is the medications or perhaps the food you are eating. I notice a real sensitivity to some foods. What meds are you on?

Hi Mccourtjs. I have fatigue. The degrees of fatigue may differ from week to week. I now have kidney issues, so I may become the queen of fatigue in a couple months. I have found exercise to be my biggest help for fatigue. I like to walk and ride a stationery bike. I also lift small weights.

I do wake up not feeling well at times. I do believe that not feeling well is often a sign for the doctor to check blood work and adjust medications. The whole point of the sparring drug is to slow down the process of disease. If I am taking the right dosage then the ill feelings should go away.

Inflammation is our constant battle. I know prednisone should help with inflammation. If you want to try some supplements then always talk to the doctor before you try anything. My muscle strength improves then it gets worse if I flare. I have good strength now.

Any time you do not feel well then always talk to the doctor. The doctor should be adjusting meds and improving quality of life.

When it comes to work, I believe that it is important to never rush into any decisions. Take your time and think carefully about what you should do for yourself. This disease does get better for many people. Stay hopeful.

I am sorry you are not feeling well. What Meds are you on. Are you tapering Pred. Are you taking something to protect your stomach from the Meds. The fatigue goes when the inflammation is under control. When did you last have lab work done. Best wishes. Autumm

I am currently taking cellcept 2x a day,weekly methotrexate injections and I am down to 7.5 mg of prednisone. I have been trying to limit glutens in my diet.

I also take prilosic daily and yes I am weening the prednisone. The sick feeling does not keep me from functioning, most of the time, but is a nuisance/ If I could eliminate that feeling, I would be so much better..

Hi Mccourtjs. It could be the taper which is causing the nausea or the MTX. I have never taken MTX injections but know Lexis has and am sure she will advise. Are you taking Folic acid so important with the MTX. I think also taking the prednisone you should be on something to protect your bones and joints like Alendronic acid once a week and vitamin D with calcium. Please let us know how it goes. Autumm

I am taking folic acid and recently started taking alendronate. The ill feeling was present before I started the methotrexate or the weening of predinisone. I'm also interested in information on natural anti-inflammatory foods or supplements.

@mccourtjs
I use several supplements for inflammation, osteoporosis, a cataract, etc. Specifically for inflammation I use InflamericZyme (from Olympian Labs) containing boswellia. It works well for me. Also, krill or omega-3 oil, and CoQ10. However, I take vitamin d3 and alpha lipoic acid for osteoporosis, and my understanding is that they also help fight inflammation. In addition, I'm on a gluten-free diet, and often avoid all grains, because all grains can cause inflammation. Dr. Andrew Weil promotes an anti-inflammatory diet. Here are a few links that might help you.
http://www.drweil.com/drw/u/ART02012/anti-inflammatory-diet
http://www.peakhealthadvocate.com/5026/best-anti-inflammatory-supplements/
http://www.huffingtonpost.com/dr-robert-a-kornfeld/5-ways-to-reduce-inflamma_b_271640.html
http://womentowomen.com/emotions-anxiety-mood/reducing-inflammation-the-natural-approach-2/

Hi Maccortji. Sorry I can't be of any further help. Might be one for your doctor. Hope you get on top of it. Autumm

Cellcept did that to me.