I'm so confused. I need some feedback. In January of 2018 I started having itching on my ears that quickly spread to my scalp. I am a nurse so I assumed the lice. I had my husband check me I checked all my kids and nothing. I started to treat myself as though it is contact dermatitis changed everything. Detergent, lotions, shampoo nothing worked. 2/5/18 I notice enlarged lymph nodes at this point I am popping benadryl like tictacs. Finally just couldn't handle any more went to the doctor. It was a Sat.so not my normal practitioner. He diagnosed me with sebaceous dermatitis, started me on topical and oral steroids . It helped the itching until the oral was gone. The itching came back with a vengeance. Got in to see my normal practitioner and she said it does look like sebaceous dermatitis but you don't treat it with steroids and she prescribed shampoo and antifungal creams. After 4 weeks of this treatment and the rash only getting worse I asked to get referred to a dermatologist.

  My first appointment with the dermatologist, 4/15/18 I was told this is contact dermatitis. (ARE YOU KIDDING ME!) I told him, I've already changed everything I don't know how that could be. He said your skin just hasn't recovered. We are gonna do a high dose of prednisone come back in 2 weeks and if it not gone we will do a biopsy. After a week of the steroid the rash got a little better the itching gone. Then on the taper down the itching slowly returned and the rash is now on my forehead, neck, shoulders,head, ears and upper back. I go back to the dermatologist and he says this is so strange i dont really know that this is. REALLY!  At this point im not leaving there without a biopsy. He tells me they will contact me in the mean time he proscribes atterax for itching and doxapin for sleep. He calls me around 5/5/18 and says "you are negative for contact dermatitis. The bad news is this is looking like a connective tissue disease and I will refer you to a rheumatologist. 

Now we are getting somewhere. I get into the the rheumatologist 5/15/18. He explained that convective tissue reaction could mean a lot of things, but with the signs of a "shawl rash", gruttons papuls and peeling irritated cuticles it looks like dermatomyositis. (Dermawhatis?) He wanted to start therapy while testing. I said no offence but I have already been miss diagnosed and treated. I need more evidence. He said okay and we started testing. Before I left his office they took a chest exray and 3 vials of blood. He calls me the following Friday and said that my ANA came back positive and he wanted me to come back to the lab to have more test to narrow this down. My liver enzymes were a little high, but my CK came back normal. My chest xray was also normal.  All of these normal test are sounding really good. Still don't know what is going on. Now this brings us to last Friday 5/25/18. The doctor calls me and said my lupus test was normal and Every other autoimmune disease test have come back normal. He is still waiting for the myopathy panel to come back from Mayo. In the mean time he wanted me to start Plaquenil and daily prednisone with topical steroid to get this rash stable, because now both eye lids are effected and now the front of my neck and left forearm.

Please help me! Is this sounding familiar to anyone else?