Polymyositis & Dermatomyositis Support Group

Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.

317 Members

2,891 Posts

0 Online

angelamichelle 10/22/2013

Hi everyone. i dont post to much on here but i think its time to start a brag thread! :D today im feeling really good..like there is nothing at all wrong and man does it feel great!
Sunday i was "working out" and i was able to sit on the floor (amazing) and do 5 girl push ups! ALSO i did 2lbs for my bicep curls! and i haven't fallen in quite some time! (knock on wood lol)
and lastly im down to 20 mg of prendisone i have been cut to that for 2 weeks now with not side affects from the taper! Life is good :)

How is everyone else doing?
I would love to hear some brags!
good day to you all:)

trpt1 10/22/2013

Hi Angelamicheal, I would like to brag that I feel well only when I DO NOT take my immunosuppressant mycophenolate. I see the rheumy tomorrow to discuss this issue.

I am doing extra exercise to lose some weight. My fasting glucose was 103 which is not too high. I do not want the glucose to go any higher, so it is time to lose pounds. It feels good to exercise.

I am also learning to sew. I am cutting a pattern for a skirt. This takes my mind off DM for a while.

angelamichelle 10/22/2013

I Hope that you get nothing but good news at the doc tomorrow and feel better without :(

sewing? i tried to learn to knit once...lol i wasnt to good.
thats cool though i would love to make my own clothes! let me know how it comes out!

nanny1611 10/22/2013

Congratulations, angelamichelle. I'm so glad for your good day. Although I still have limitations, I feel quite blessed to live a nearly normal life now. God has been so good to me. I will say a prayer that you have many days that are as good as (or better than) today.

pluggingon 10/22/2013

I have some better days and some not so good days. But in spite of that, I'm grateful to be around after 22 years of dealing with this combination of diseases. There's always something to be grateful for. Glad you are feeling so well. Wish you many, many years of feeling well!

angelamichelle 10/23/2013

thanks guys :-)
i wasnt able to do the 5 push-ups last night but i def did as many as i could and am still happy :)
its crazy how much i appreciate the LITTLE things now.
never take a day for granted :)
i swear this was a blessing in disguise!

mccourtjs 10/24/2013

I don't want to jinx myself, but I have had several good days in a row. I have started taking methyltrexate injections with no side effects and have reduced my prednisone to 10 mg successfully. I think the cellcept that I have been on for 2 months has helped a lot but will begin decreasing it in a few weeks. My muscle strength has improved and the extreme fatigue is gone. I just pray that this continues so that I can go back to work. I still have inflammation especially on my face and head but I can deal with it.

angelamichelle 10/24/2013

That is awesome news :) I'm glad you've been doing great!! That's inspiration to me caused legs just don't seem to get any stronger . Just gotta remember to take it slow I guess :)

Join the Conversation