Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
so i went to the doc yesterday. my cpk lvl is at 890 down from 1890...so thats GREAT :)
im currently not taking any meds. he said the acthar is still working in my system. i also have slightly high blood pressure so i have to go back in 3 weeks to make sure that is under control.
We also found out that i need to work on my hips and triceps. but everything else is strong :)!! i knew it! lol
I am in no pain except when i stretch my hips..he told me not too lol and to not be afraid to be sore..i was because that was my main symptom (besides rash) of my DM. so overall great appointment :D
does anyone have any good exercises for hips and triceps?
thanks for reading :)
im currently not taking any meds. he said the acthar is still working in my system. i also have slightly high blood pressure so i have to go back in 3 weeks to make sure that is under control.
We also found out that i need to work on my hips and triceps. but everything else is strong :)!! i knew it! lol
I am in no pain except when i stretch my hips..he told me not too lol and to not be afraid to be sore..i was because that was my main symptom (besides rash) of my DM. so overall great appointment :D
does anyone have any good exercises for hips and triceps?
thanks for reading :)
A cpk of 890 is high in my Rheumy's book. Mine only went to 1000, and he put me on 60mg Prednisone. Got it down to 165, got down to 20mg, then it started going back up. At 306, he ordered the Rituxan treatment. Not trying to be judgmental, but my Rheumy would have ordered some kind of meds.
Maybe dancing while holding on to a ballet bar. I like the ellipse cycles, too, as you push forward with your feet from a seated position. I can do 10 minutes when on one of those machines. I also wiggle in my lifechair...anything to move and keep the fluids moving in my limbs.
Good luck.
=^.,.^=
also he told me for my age an okay level would be 300 because i am active. 100 non active. like i stated i still do have meds in my system and i was told that my lvl's will be high while the repairing process is going on. who knows lol hes going to keep a close watch to make sure they dont rise .
i do feel good and strong though. i have a ton of energy and everything too so like autumm said i think he is more concerned about that. he also was never to concerned about my rash .
and thank you for exercise suggestion :) i do run on an elliptical every other day now its amazing! :D