Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
Hello everyone. My father's death and all of the pain that I have been experiencing recently has gotten me to thinking about my day to day livilihood. I seem to spend the majority of my time miserable and wrapped within pain, which is so out of character for me. I can't help but think that satan must think that he has won me over, but he is wrong. My father's death and the thoughts and prayers that I have gone through, have brought me back to the surface to where I belong. I am always in more pain than any human should ever have to endure, but I know that my body is alive because I feel it moving. I am working my brain by writing and re-writing due to all the misspelled words. I am refusing to just sit in one spot and letting my joints stiffen.. I am fighting the insurance company for my appeal. I refuse to give in to this beast. I am going to try everything that my specialists suggest that may help to give me a quality of life.
Thank you for reminding us to press forward. I am not going to allow my setbacks to discourage me.
You are in my prayers and keep us posted.
No documentation was given so there can't be a precedent, but we were reimbursed after a four round appeal process. Our medical review was done by a retired pediatrician. It was laughable.
My wife told them we don't pay any attorney fees so we're just going to keep it up until they either pay us back or we've bled the same amount of money out of them. It took over a year but it did happen. It can be done!
Of course the $5000 immediately went to other past due doctor bills. Easy come, easy go. But I did treat my attorney to a spa day and a new purse from brighton.
Joel said that Jesus used to speak to afflictions directly as though they were people. He'd tell them they were not welcome and he would command them out in the name of God.
So I started doing that. I call it smack talk. I get on twitter all the time and address my DM directly.
Recent Examples:
CD20 B-cells.. I'm talking to you! Why can't you be more like your CD9 brothers and sisters. They aren't trying to kill me. Just saying
HEY DM, how'd you like that rituxan? Eat hot death you little b-cell #*&#$#'s. Nobody turns on me and lives.
(you'd have to be into video games to get this next one but its one of my favorites)
Cave Johnson here. CD20 B Cells. Yes you. In this test we're sending monoclonal biologics to kill you. A tingling sensation is normal.
Oh and sometimes its less cerebral.
HEY DM, If my dog were as ugly as you, I'd shave its butt and teach it to walk backwards.
I'll go through 20 or so and I always feel much better. The twittersphere probably thinks I'm nuts. But that's OK.
And sometimes I just tell it to give up. I have God and the angels and my mom and gramma and grampa and all my doggies and I think even a horse or two (I was very little) on my side, oh and my recently departed guinea pig (RIP) so what possible chance can some stupid little cells have? I have 200 people I've never even met praying for me two towns over. How can you stand against that kind of power? You can't. Just fold it up little b-cells. You're embarrassing yourselves.
You mentioned the importance of prayer for this disease. I could not agree more how the prevailing prayer from others is a big help for DM/PM. My DM is under control and I am on 6.5mg of prednisone. I also have overlapping scleroderma with heart, lung, liver, and epilepsy involvement and I am doing terrific due to The Lord.
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Welcome to the group!
I am so sorry you lost your father and I understand. Thursday, July 11 will be one year that I lost mine.
Your not alone,,, so, keep that fighting attitude and pray.
angela
You have been an inspiration to so many... May it come back to you in multiples.
Sending you patience with yourself and some strength to find the next path...
Shawna
I am sorry for your loss. I am happy that you are fighting and not giving in. A neighbor recently gave me a book called Battlefield of the Mind by Joyce Meyer. Wondering how I keep forgetting that satan gets a stronghold in my mind. I keep referring to this book. Now, am reading Change Your Words Change Your Life, also by Joyce Meyer. I was a little skeptical about reading this book, the title sounded too weird. However it continues to be a help to me, as my negativity can so easily get the best of me. Blessings to you.