Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
My pain specialist changed my meds from Opana to Nucyntra, a new medication that was supposed to work well between my legs which is where the pain is located and my brain which interprets the brain,,,,right. I wanted to killed after less than 24 hours. I thought the Opana wasn't working since I am always in pain and now take 20mgs of Opana every 12 hours plus required a 10mg pill at the 6 hour interval in addition, which is really too much. but when I took 100 mgs of Nucyntra and never felt anything at all and wasn't about to spend even more money to try the 150 mg that may not work also. What is everyone else taking for pain if anyone has nerve damage. I not only have PM but also nerve damage which is the cause of my pain.
Other things that helped with my pain were vitamin d3, Lauricidin, and a gluten-free diet. More recently, my feet became a source of terrible pain, and I had all the markers of nerve damage starting in my feet and starting up my ankles. It was through a website that I read about lots of vitamin c being helpful for nerve pain, along with alpha lipoic acid and pycnogenol. I took all 3 for awhile, but now just take the vitamin c. I don't know if any of these would help you, but wanted to share the things that helped me.
While I still have pain, it is tolerable now. I feel so bad for you, because I remember the 24/7 horrible pain I used to have. I am praying for you often, and asking the Lord to help you and your doctors find the solution. May God grant you relief and peace.