That is wonderful news. Now you can get about more and get those much less inflamed muscles moving. It has been a long haul for you but looks as if you are nearly there, fantastic !!! Onwards now. Best wishes. Autumm

Yay! Congratulations, okapi2. So glad to hear that your health is moving in the right direction. Best wishes to you for continued good success.

YEAH!!! I am glad to hear you are improving! This is good news. What do you think helped your CPK to lower? Diet? Prednisone? I wish you the best.

I'm so excited for your Okapi! I know you've been on a long journey. That is a huge accomplishment.

Awesome! What do you think worked for you?

Great news...

Honestly, what worked for me is nutrition. I've been trying different things with my diet since I got sick, but I started seeing a new doctor in June who really has a handle on it. I've been eliminating certain foods and adding others back in, and my cpk's have been falling falling, even as I'm coming off of imuran and prednisone.

The meds helped of course, but I had sort of leveled off with them and didn't see any more improvement til I started tweaking my diet.

Thanks everyone!

Okapi what are you seeming to react to?? I ask because i have a strong itching and rash reaction to tomato and sweet peppers. Okay with hot chile sauce.

Hope it continues, shawna

My doctor had me eliminate corn, soy, gluten, vinegar, coffee, chocolate, alcohol, dairy/eggs, yeast, potatoes, tomatoes, peppers, eggplant (anything in the nightshade family), and citrus (except lemon), and she had me cut way way way down on the amount of sugar I eat.

This is not forever, the idea is to add these things back in one at a time to see how you react. I haven't added anything back in yet. But I feel great!

oh and peanuts too! I knew I forgot something...