Greetings, I am very new to this group, in fact joined today. I have had PV for 25 years, and in the USA, I had many clots, and embolisms when I was younger, 39 - 45. Later I moved to Bangkok, Thailand, I did not have a clot in 15 years! My first blood draining here cost me $7. But that is not what I want to tell you. About 5 months ago, my brain was getting dizzy, I could not get my leg up over a motorcycle seat, and I was having a lot of dizzy spells, problems with food. So, I did some experimenting on myself.
I started researching what could help me. I lost 10 kilos, I was getting weak. I was having trouble twisting door knobs, my fingers could not remember where the keys are and they were stiff. My blood counts were up.

HCT 55 too often. My Red Cell at 16 way too often. I had taken 10mg of Cumadin for years, maybe 24 years. I take 500 a day hydrea. So what to do. OK, what I have been doing and taking gave me a miracle of sorts. I am suddenly stronger, full of power, brain working, it all came back. Swelling in my bad leg about gone. I started body building and muscles are coming back. Just my upper body. I am 66, 25 years of Polycythemia primary.

Here is what I take. Yes, I was warned about doing exercise. I have been warned about eating too many veggies.

A couple months ago my HCT was 35, my Blood count 11.5, it has never happened in 25 years. My arms have muscles that bulge naturally when I wake up. No dizzyness. My legs feel light and moving, even the bad one.

Is this normal? So, here is what I take.

I sent this to a friend yesterday.

OK, I will give you my list. I have been working on it over 6 months. I was not gaining any muscle. I think my weight is up 4-5 kilos now. That is not fat.

If you take what I take, and I have a long term blood disease, so its always uphill, it will do your good. The 48 year old Thai guy at dollar city took a couple things I brought him and he really like it.

I will gave you the MUST HAVE list first.

1. Aniracetam - I bought it on Ebay, it is a mental supplement. I felt up the first day, in fact, I was already feeling good and this was even better. After one week I am adding it to my must have list. 750MG

2. Alpha Brain - Another one for the brain, I would not be without it. A must have. Buy from Fitking on Ebay

3. Oreganol - the original one, its like the fish oil, my buddy sent it to me. I am adding it to my every day vitamins.

4. PenaTropin - on Ebay. It will help you there, but it has increased circulation and general feeling. With all this stuff, I have not noticed much floating anxiety, and I eat less. Its Must. Male hormones

5. MOREPA - the best fish oil from Belgium - But now I take two different ones 2000mg a day. 1000 already made a difference, but now its even better. I am flying with this stuff. My blood counts are down, way down and the swelling in my bad leg is way down, and I can almost jump on a motorcycle now. Before it hurt to put my leg up. Once more thing, my recovery for sore muscles has been much better the past couple weeks. Like yesterday, I did way too much, had some tweaking pains in my back, they are gone today.

6.Active Multi, I think its time released by Finaflex. Its cheap, I take it twice a day.

7. Primal defense Ultra - Probiotic Formula - Helps me to digest and get rid of the heart burn. I would not be without it.

8. MAP - Amino Acid - Five star supplement

9. Padma Basic, from Nepal, helps circulation and old age. Researched and proven.

10. OPTI-MEN 5 star supplement

11. Padma basic from Nepal, known to help older people with disease problems.

I am not affiliated with any company to sell vitamins. I have never told anybody about this, and the people I know have heard my rap and won't do anything to change what they are already doing.

Add to this, light body building 3 times a week. I do 4 upper body exercises 3 days a week, doing 20 - 30 reps per set. If I feel better I do 30 - 40 reps per set, something like 30 lbs of weight.

I took 1000 mg of a selected fish old in the beginning, but at 2000 mgs a day, its been real good. This is the best I felt in years. I through away my cane. I had two of them. The alpha brain, and I tried several after reading the reviews, its good. But the

Aniracetam

Its unreal. The first day I had a boost, I never got tired, And I work at the computer long hours, but I have some exercise to get up every two hours. I don't think any doctor will tell you to take any of this stuff, it is not at your drug store. Forget GNC stores. Their stuff is useless. Their reviews are untrue. What I am telling you here is reality from a guy that was sick a long time, had huge medical bills, changed his country, diet, lifestyle, and is surviving. And I was almost gone not long ago, I had a DVT maybe two years ago, I treated it at home with shots into the fat cells, cost me $1000 or less for all the treatment, and I was up and walking in two weeks, but the recovery after that took months to feel normal, and normal became not so normal after 2 years. This this sent me to do what I have done. My blood counts after 3 months are hct 39 and my other one 12.5. What does this mean to you, I don't know. I am putting this information out into a support group hoping there are others doing their own thing and feeling better. Anybody?