Pernicious Anemia Community Group
Decrease in Red Blood Cells due to Vitamin B12 deficiency from malaborption through the gastrointestinal tract. This form of anemia is part of Megoblastic Anemia which is where the blood cells are larger then normal. Anemia is a condition where the body does not have enough healthy blood cells and therefore does not allow enough oxygen to body tissues. Please join the...
I find it really hard to cope with my pernicious anemia, it's hard because I have to get up out of bed in the morning at 7 for school and no matter how much i sleep it makes me tireder and tireder.. sometimes i do just feel like ending it all just cause i feel that lousy and it affects my concentration in school and doing any other activities non school related, it's hard for that because i am just going lower and lower in my grades, I think the one thing I despise about it has to be how run down i'm constantly feeling.. I am on iron and folic acid tablets everyday and a B12 injection every three months..
I would love to know if anybody else has it and how they cope? :)
I would love to know if anybody else has it and how they cope? :)
What were your folic levels at your last testing and what where you b12 levels? Have they concluded whether or not you have the Intrinsic Factor in your stomach?
My levels have been at rock bottom and I have never been that tired. I get fatigued rather easily, but I've always been able to get up and get going after a night of partial rest. I don't sleep over 4 hours.
I'm wondering if you are getting the right treatment. My hematologist told me that treatments vary depending on the levels, and sometimes it may take a specialized b12 cocktail. I was able to get my levels normal by overdosing on b12 patches. My neurologist wants me to continue using the patches at the rate I was using them to maintain a normal level. I have neuropathy due to my b12 deficiency. I have yet to be told whether or not I have pernicious anemia. I have alot of the classic symtoms when I am deficient, but because I have chronic gastritis, that is why I can't absorb b12. I had one dr tell me I had PA then another one say No. Yet I can't ever donate blood because I'm Anemic--Not from Iron.
Speaking of Iron, are you Iron deficient as well? What about your D3 levels? If I were you I would seek another dr for a 2nd opinion, make sure it's a specialist, because you are too young to be suffering like this. Also if you are iron deficient avoid wheat products because it blocks your iron absorbancy.
they haven't even thought of intrinsic factor in my stomach!
I don't know how you do it, i'm constantly asleep! my school said i have a 10am deadline to be in school because they know about my situation..
I think because my mum and nana have it, they just assumed that's what it is, because my B12's arn't working lately :(
you can get a B12 patch?
well I hope it's nothing major for you! I hope it'll blow over soon! I'm sorry to hear they haven't diagnosed you with anything yet.. I know it's awful, I went a year before they knew what was happening with me!
I'm not a loud a period anymore, because it wasts to much of my blood! :/
Good luck and Happy Holidays
and how much are they? do you live in the uk?
and hematologist at alder hay hospital in liverpool!
hope you enjoyed your christmas!
Sorry I live in the US--were you able to find any b12 patches?