After seeing our group is so small and comments about it's growth and the interest in the topic, here's what I found.
There's a foundation devoted to the neuropathy of which the details are:
Founded October 2007
Contact info:
Phone 847-883-9942
Email info@tffpn.org
Website http://www.foundationforpn.org/
"The Foundation for Peripheral Neuropathy works to educate the public and healthcare professionals, provide state-of-the-art treatment for patients with peripheral neuropathy, and will be the catalyst for advancing innovative therapeutic developments and accelerating a cure for painful neuropathies."