Welcome to our neutropenia group. We needed to be counted in on this site and have a place to discuss. So here we are. I was diagnosed with cyclical neurtopenia aprox. 8 years ago. Doc says I've had it all my life and I think he's right, when I think about it. Every 6 months feeling crappy and coming down with any and everything out there. It wasn't until I was bit by my husbands African Grey parrot, a gift from me, that things really got serious. Thinking I just had a flu bug, again, I didn't go to the doctor until my finger blew up where I had gotten bit. Well there just so happens to be a parasite that birds carry, that the pet store didn't tell me about when I asked. So I became the hospital's Bird Girl. Six months later it was phnemonia(?). Two weeks in intensive care and a week on the floor. Six months later it was something else. Back into the hospital. Some where in here I think is when I first hear that "n" something word. Mean while, my primary doc at the time kept asking me why am I always so sick. I think it around this time I fired him. Six months later, back to the hospital. Heard that "n" something word again and received my first neprogin shot (not the new one, but the old one. OMG back labor again! I'm not even pregnant "Nurse my Diloted(?)!!!!! Awsome pain med! Hemotologist was delighted, me not so much. Bi-weekly blood tests, boosters when I needed them... Six months later. Yup, back to the hospital. This time my white cells were working and presented themselves in my neck, in the form of goiter like mass. Tested for every disease know to man. To this day they don't know why. My infectious disease doc was persistant and probably wanted to name it after himself. Anyway, I guess there is hope. I've been in remission for 3 whole years and been staying pretty healthy. Right now I've got something cycling through me every month or so that I believe to be Cronic Fatique Syndrome. Time and the doc will tell. I want to hear from you!!!
Peace, love, and health,
Peace, love, and health,
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